Pain Support for Adults with a Diabetes-Related Lower Limb Amputation: an Empirical Phenomenology Study

Pain Support for Adults with a Diabetes-Related Lower Limb Amputation: an Empirical Phenomenology Study
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DOI:
10.1016/j.pmn.2018.09.007
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发表时间:
2019-06-01
影响因子:
1.7
通讯作者:
Paul, Joanna
Paul, Joanna
中科院分区:
医学3区
文献类型:
--
作者:
Horne, Carolyn E.;Paul, Joanna

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背景:据报道,高达80%的患者接受了截肢手术后的慢性疼痛。截肢是糖尿病最令人衰弱的慢性并发症之一,其后果多种多样,包括抑郁、不能进行日常活动以及生活质量的改变。目的:本研究试图了解糖尿病相关截肢患者慢性疼痛支持的生活体验。方法:研究人员采用定性经验现象学设计。在有目的的样本(N=11)上进行了私下的、半结构化的访谈。结果:研究发现了三个主要主题:(1)幻痛是不可治疗的疼痛;(2)支持系统是非同理心的;(3)参与者经历了对新常态的认同。参与者不理解神经病理性(幻觉)疼痛是整个疼痛体验的一部分。此外,他们认为没有来自家人或提供者的帮助来缓解这种疼痛。结论:幻觉疼痛被认为是参与者在发生时必须忍受的东西。他们不觉得家人或提供者理解他们的痛苦。此外,他们想要一种使用非药物疗法来控制疼痛的方法。(C)2018年美国疼痛管理护理学会。爱思唯尔公司出版,版权所有。
Background: Chronic pain after lower extremity amputation surgery has been reported in up to 80% of patients. Amputations are among the most debilitating chronic complication of diabetes with a variety of consequences including depression, inability to perform daily activities, and change in quality of life.Aims: This study sought to understand the lived experience of chronic pain support among those who have undergone a diabetes-related lower limb amputation.Method: Researchers used a qualitative empirical phenomenology design. Private, semistructured interviews were conducted on a purposive sample (N = 11). Codes were identified for each participant separately and then across participants for common themes.Results: Three major themes emerged from the research: (1) Phantom pain is nontreatable pain; (2) support systems were nonempathetic; and (3) participants experienced identification of a new normal. Participants did not understand that neuropathic (phantom) pain was part of the total pain experience. Further, they felt that there was no help from family or providers for alleviation of this pain.Conclusions: Phantom pain was identified as something the participants had to tolerate when it occurred. They did not feel that family or providers understood their pain. Further, they wanted a means of controlling their pain using nonpharmacologic therapies. (C) 2018 American Society for Pain Management Nursing. Published by Elsevier Inc. All rights reserved.