The T1D Exchange Clinic Registry
The T1D Exchange Clinic Registry
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DOI：
10.1210/jc.2012-1561
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发表时间：
2012-12-01
影响因子：
5.8
通讯作者：
Hall, Callyn A.
中科院分区：
文献类型：
--
作者：
Beck, Roy W.;Tamborlane, William V.;Hall, Callyn A.
内容：T1 D Exchange包括一个以诊所为基础的注册表，一个以患者为中心的网站，称为Glu，和一个biobank.Objective：该研究的目的是描述T1 D Exchange诊所注册表，并提供一个概述的参与者characteristics.Design：通过参与者完成问卷和图表提取获得的数据包括糖尿病史，管理和监测，一般健康状况，生活方式，家族史，糖尿病史，糖尿病史。社会经济因素;药物;急性和慢性糖尿病并发症;其他医疗条件;和实验室结果。设置：数据收集自美国67个内分泌中心。患者：我们研究了25，833名成人和儿童，推测患有自身免疫性1型糖尿病（T1 D）。结果：参与者的年龄范围从小于1岁到93岁，50%为女性，82%为白人，50%使用胰岛素泵，6%使用动态血糖监测，16%有一级家族成员患有T1 D。糖化血红蛋白在入组时平均为8.3%，在13至25奥尔兹中最高。肾脏疾病的患病率为
Context: The T1D Exchange includes a clinic-based registry, a patient-centric web site called Glu, and a biobank.Objective: The aim of the study was to describe the T1D Exchange clinic registry and provide an overview of participant characteristics.Design: Data obtained through participant completion of a questionnaire and chart extraction include diabetes history, management, and monitoring; general health; lifestyle; family history; socioeconomic factors; medications; acute and chronic diabetic complications; other medical conditions; and laboratory results.Setting: Data were collected from 67 endocrinology centers throughout the United States.Patients: We studied 25,833 adults and children with presumed autoimmune type 1 diabetes (T1D).Results: Participants ranged in age from less than 1 to 93 yr, 50% were female, 82% were Caucasian, 50% used an insulin pump, 6% used continuous glucose monitoring, and 16% had a first-degree family member with T1D. Glycosylated hemoglobin at enrollment averaged 8.3% and was highest in 13 to 25 yr olds. The prevalence of renal disease was