The PCORI Engagement Rubric: Promising Practices for Partnering in Research
The PCORI Engagement Rubric: Promising Practices for Partnering in Research
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DOI：
10.1370/afm.2042
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发表时间：
2017-03-01
影响因子：
4.4
通讯作者：
Paez, Kathryn A.
中科院分区：
文献类型：
--
作者：
Sheridan, Susan;Schrandt, Suzanne;Paez, Kathryn A.
目的 让患者、护理人员和其他医疗保健利益相关者作为合作伙伴参与规划、开展和传播研究是改善临床决策和结果的一种有前景的方法。然而，许多研究人员、患者和其他利益相关者不清楚何时以及如何作为合作伙伴参与临床研究过程。为了满足在以患者为中心的临床比较有效性研究中建立有意义的利益相关者伙伴关系的指导需求，以患者为中心的结果研究所 (PCORI) 制定了 PCORI 参与评分标准 (Rubric)。 方法 PCORI 根据文献综合、患者定性研究、对 PCORI 资助的项目申请中的参与计划进行有针对性的审查以及与 PCORI 患者参与咨询小组的主持讨论和审查制定了评分标准。 结果该标准提供了一个框架，用于将患者和其他利益相关者纳入研究的所有阶段。它包括： 参与原则；利益相关者类型的定义；规划、开展和传播参与研究的关键考虑因素；潜在的参与活动；结论 PCORI 设计该评分标准是为了向有兴趣申请 PCORI 资助的研究人员以及有兴趣更多地参与研究的患者和其他利益相关者说明参与的机会。通过鼓励 PCORI 申请人、获奖者和其他人应用该标准，PCORI 希望将研究范式从以患者为对象进行研究转变为与患者和其他利益相关者合作进行的追求，以更好地反映对患者社区重要的价值观、偏好和结果。
PURPOSE Engaging patients, caregivers, and other health care stakeholders as partners in planning, conducting, and disseminating research is a promising way to improve clinical decision making and outcomes. Many researchers, patients, and other stakeholders, however, lack clarity about when and how to engage as partners within the clinical research process. To address the need for guidance on creating meaningful stakeholder partnerships in patient-centered clinical comparative effectiveness research, the Patient-Centered Outcomes Research Institute (PCORI) developed the PCORI Engagement Rubric (Rubric).METHODS PCORI developed the Rubric drawing from a synthesis of the literature, a qualitative study with patients, a targeted review of engagement plans from PCORI-funded project applications, and a moderated discussion and review with PCORI's Advisory Panel on Patient Engagement.RESULTS The Rubric provides a framework for operationalizing engagement to incorporate patients and other stakeholders in all phases of research. It includes: principles of engagement; definitions of stakeholder types; key considerations for planning, conducting, and disseminating engaged research; potential engagement activities; and examples of promising practices from PCORI-funded projects.CONCLUSIONS PCORI designed the Rubric to illustrate opportunities for engagement to researchers interested in applying for PCORI funding and to patients and other stakeholders interested in greater involvement in research. By encouraging PCORI applicants, awardees, and others to apply the rubric, PCORI hopes to shift the research paradigm from one of conducting research on patients as subjects to a pursuit carried out in collaboration with patients and other stakeholders to better reflect the values, preferences, and outcomes that matter to the patient community.