Information issues for providers of services to people with dementia living in the community in Australia: breaking the cycle of frustration
Information issues for providers of services to people with dementia living in the community in Australia: breaking the cycle of frustration
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DOI：
10.1111/j.1365-2524.2008.00808.x
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发表时间：
2009-03-01
影响因子：
2.4
通讯作者：
Vickers, James
中科院分区：
文献类型：
--
作者：
Robinson, Andrew;Emden, Carolyn;Vickers, James
痴呆症患病率的上升和随之而来的对痴呆症服务的需求是全球性问题。在澳大利亚，痴呆症已获得国家卫生优先地位，各级政府已实施服务战略，以帮助管理痴呆症患者的复杂生活。尽管认识到信息是有效提供痴呆症服务的关键，但对个人提供者的信息需求以及用于在提供者之间传输信息的过程知之甚少。这项定性研究的范围内的信息问题，为老年痴呆症患者生活在澳大利亚塔斯马尼亚州南部的社区，包括信息需求，可用性和转让的关键服务提供商。与全科医生，住宅老年护理设施的工作人员，家庭护理人员，社区卫生护士和老年护理评估小组成员举行了11个焦点小组。调查结果显示，供应商群体共享共同的，虽然不知道他们，信息需求（如诊断，行为和服务）和信息的关注（如不可信的信息和不良的信息传输），导致服务协调不良。全科医生成为一个突出的群体，其需求和关注明显少于其他提供者，这一发现特别令人感兴趣，因为他们在痴呆症诊断和转诊方面发挥着关键作用。与会者坚定地认为，痴呆症服务的电子数据库和单一入口点将改善服务的提供，应予以发展。该研究强调了社区痴呆症服务提供者的信息可转移性，可访问性和可信度的复杂性和相关挫折。我们认为，加强对提供者多样但又相互依存的作用的理解，可以在打破所有参与者所经历的挫折循环方面发挥重要作用，从而促进系统改革。
The rising prevalence of dementia and concomitant demands upon dementia services are global issues. In Australia, dementia has attained national health priority status and governments at all levels have implemented service strategies to help manage the complex lives of people with dementia. Despite recognition that information is pivotal to effective dementia service delivery, little is known about the information needs of individual providers and the processes used to transfer information between providers. This qualitative study scoped information issues for key service providers for people with dementia living in the community in southern Tasmania, Australia, including information needs, availability, and transfer. Eleven focus groups were held with general practitioners, residential aged care facility staff, home carers, community health nurses, and aged care-assessment team members. Findings revealed that provider groups shared common, albeit unbeknown to them, information needs (e.g. diagnosis, behaviours, and services) and information concerns (e.g. untrustworthy information and poor information transfer) leading to poor service coordination. General practitioners emerged as a stand-out group with markedly fewer needs and concerns than other providers, a finding of special interest given their pivotal role in dementia diagnosis and referral. Participants were adamant in their view that electronic data bases and single points of entry to dementia services would improve service provision and should be developed. The research highlights complexities and associated frustrations of information transferability, accessibility, and trustworthiness for dementia service providers in the community. Increased understanding of providers' diverse yet interdependent roles could, we believe, play an important part in breaking the cycle of frustration experienced by all participants and thus contribute to system reform.