Comparing patient, parent, and staff descriptions of fatigue in pediatric oncology patients
Comparing patient, parent, and staff descriptions of fatigue in pediatric oncology patients
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DOI：
10.1097/00002820-199908000-00004
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发表时间：
1999-08-01
期刊：
影响因子：
2.6
通讯作者：
Quargnenti, A
中科院分区：
文献类型：
--
作者：
Hinds, PS;Hockenberry-Eaton, M;Quargnenti, A
儿童和青少年癌症患者的疲劳是一种值得护士进行临床干预的破坏性症状，但却无法定义，测量和干预。这些患者的疲劳存在于疾病、治疗、儿童和家庭发展的一个更大背景中。任何定义、测量和干预疲劳的努力都需要考虑这些儿童和青少年治疗环境的主要组成部分。这项描述性研究的目的是从三个角度（患者，父母和工作人员）了解如何在7至12岁的儿童和13至18岁的青少年癌症患者中识别和定义疲劳，以及哪些因素导致或减轻这种疲劳。为了引出这些信息，在两个儿科肿瘤中心与患者、父母和工作人员进行了单独的焦点小组讨论。结果访谈数据进行了分析，使用语用和语义内容分析技术和威尔逊概念分析过程。研究结果清楚地表明，儿童，青少年，父母和工作人员对患者疲劳的定义不同。儿童数据的概念定义强调疲劳的身体感觉;青少年的定义强调交替和有时合并的身体和精神疲劳。父母和工作人员认为自己有责任减轻患者疲劳;患者认为休息和分散注意力是改善疲劳的主要来源。我们的三组参与者对疲劳的概念定义可以帮助儿科肿瘤患者，他们的父母和工作人员识别疲劳。这些参与者确定的导致或减轻疲劳的因素可能是未来旨在减少儿科肿瘤患者疲劳的干预措施的基础。
Fatigue in children and adolescents with cancer is a disruptive symptom meriting clinical intervention by nurses, but has eluded definition, measurement, and intervention. Fatigue in these patients exists within a greater context of illness, treatment, and child and family development. Any effort to define, measure, and intervene with fatigue needs to take into consideration the major components of these children and adolescents' treatment context. The purpose of this descriptive study was to learn from three perspectives (patient, parent, and staff) how fatigue is identified and defined in 7- to 12-year-old children and in 13- to 18-year-old adolescents with cancer and what factors contribute to or alleviate this fatigue. To elicit this information, separate focus groups were conducted with patients, parents, and staff at two pediatric oncology centers. Resulting interview data were analyzed using pragmatic and semantic content analysis techniques and the Wilson concept analysis process. Findings clearly indicated that children, adolescents, parents, and staff define patient fatigue differently. The conceptual definition from the child data emphasizes the physical sensation of the fatigue; alternating and at times merging physical and mental tiredness are emphasized in the adolescent's definition. Parents and staff view themselves as responsible for alleviating patient fatigue; patients viewed rest and distraction as their primary sources of improving fatigue. The conceptual definitions of fatigue as rendered by our three groups of participants can assist pediatric oncology patients, their parents, and staff in identifying fatigue. Factors identified by these participants as contributing or alleviating fatigue could be the basis for future interventions designed to reduce fatigue in pediatric oncology patients.