Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: improvements and remaining challenges.
Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: improvements and remaining challenges.
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DOI：
10.1007/s11136-009-9523-x
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发表时间：
2009-10
影响因子：
3.5
通讯作者：
Weinfurt, Kevin P.
中科院分区：
文献类型：
--
作者：
Fortune-Greeley, Alice K.;Flynn, Kathryn E.;Jeffery, Diana D.;Williams, Megan S.;Keefe, Francis J.;Reeve, Bryce B.;Willis, Gordon B.;Weinfurt, Kevin P.
关键词：
患者报告的结果测量信息系统™（PROMIS™）的一个目标是开发性功能的测量，该测量拓宽了性活动的定义，并包含反映癌症患者确定为重要的结构的项目。我们描述了认知访谈如何提高项目的质量，并讨论了在癌症人群研究中评估性功能的剩余挑战。我们对39名癌症患者和幸存者进行了关于性体验的认知访谈。83个候选项目中的每一个都被5到24名参与者看到。参与者包括男性和女性，并因癌症类型，治疗轨迹，种族和识字水平而异。在随后的访谈中重新测试了重大修订的项目。认知访谈提供了关于项目的相关性、敏感性、适当性和清晰度的有用反馈。参与者确定了广泛的术语（如“性生活”）来评估性体验，并暴露了持续测量性功能的挑战，同时考虑了调整和未调整的性体验。认知访谈是关键的项目细化的PROMIS措施的性功能的发展。目前正在努力在更大的癌症人群中验证该措施。
One goal of the Patient-Reported Outcomes Measurement Information System™ (PROMIS™) is to develop a measure of sexual functioning that broadens the definition of sexual activity and incorporates items that reflect constructs identified as important by patients with cancer. We describe how cognitive interviews improved the quality of the items and discuss remaining challenges to assessing sexual functioning in research with cancer populations. We conducted 39 cognitive interviews of patients with cancer and survivors on the topic of sexual experience. Each of the 83 candidate items was seen by 5 to 24 participants. Participants included both men and women and varied by cancer type, treatment trajectory, race, and literacy level. Significantly revised items were retested in subsequent interviews. Cognitive interviews provided useful feedback about the relevance, sensitivity, appropriateness, and clarity of the items. Participants identified broad terms (eg, “sex life”) to assess sexual experience and exposed the challenges of measuring sexual functioning consistently, considering both adjusted and unadjusted sexual experiences. Cognitive interviews were critical for item refinement in the development of the PROMIS measure of sexual function. Efforts are underway to validate the measure in larger cancer populations.
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