Disclosure of diagnosis by parents and caregivers to children infected with HIV: Prevalence associated factors and perceived barriers in Addis Ababa, Ethiopia
Disclosure of diagnosis by parents and caregivers to children infected with HIV: Prevalence associated factors and perceived barriers in Addis Ababa, Ethiopia
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DOI：
10.1080/09540121.2012.656565
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发表时间：
2012-01-01
影响因子：
1.7
通讯作者：
Teferra, Solomon
中科院分区：
文献类型：
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作者：
Abebe, Workeabeba;Teferra, Solomon
艾滋病毒从受感染的母亲垂直传播给儿童是一种普遍现象。在采用高效抗逆转录病毒治疗（HAART）后，大多数儿童的寿命比以前更长。最近，生活在撒哈拉以南非洲国家的儿童已广泛获得HAART，这使得披露艾滋病毒状况成为一个重要问题。我们进行了一项横断面调查，涉及在亚的斯亚贝巴Yekatit 12医院儿科传染病诊所接受随访的172名感染艾滋病毒学龄儿童的父母/照顾者。感染艾滋病毒的学童中只有16.3%知道自己的诊断结果。儿童年龄是信息披露的主要预测因子（OR: -0.25; 95% CI: -0.35, -0.09; p < 0.05）。隐瞒的主要原因是害怕对孩子产生负面的情绪影响。超过一半的父母/照顾者同意他们需要告诉孩子他们的诊断，但86%的人报告说，他们需要卫生保健提供者在活动中帮助他们。本研究发现的低披露率表明需要提高卫生专业人员的认识和培训，这应得到在儿科抗逆转录病毒治疗诊所工作的卫生专业人员遵循的适当指南的支持。需要向照料者提供必要的知识和技能，让他们知道如何照料知道自己艾滋病毒状况的儿童。
Vertical transmission of HIV from infected mothers to children is a common phenomenon. After the introduction of highly active antiretroviral treatment (HAART), most children live longer than before. Recently, HAART has become widely available to children living in sub-Saharan African countries, and this makes disclosure of HIV status an important issue. We conducted a cross-sectional survey involving 172 parents/caregivers of HIV-infected school-age children who had follow-up at the Pediatric Infectious Disease Clinic of the Yekatit 12 Hospital, Addis Ababa. Only 16.3% of HIV-infected schoolchildren knew their diagnosis. The child's age was the main predictor of disclosure (OR: -0.25; 95% CI: -0.35, -0.09; p < 0.05). The main reason for nondisclosure was fear of negative emotional consequences for the child. More than half of the parent/caregivers agreed that they need to tell the children their diagnosis, but 86% reported that they needed health care providers to help them at the event. The low rate of disclosure found in this study shows the need for awareness creation and training of health professionals, and this should be supported by appropriate guidelines to be followed by health professionals working in pediatric ART clinics. Caregivers need to be provided with the necessary knowledge and skills on how to look after children who know their HIV status.