PROsetta: An R Package for Linking Patient-Reported Outcome Measures
PROsetta: An R Package for Linking Patient-Reported Outcome Measures
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DOI：
10.1177/01466216211013106
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发表时间：
2021-05-20
影响因子：
1.2
通讯作者：
Cella, D.
中科院分区：
文献类型：
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作者：
Choi, S. W.;Lim, S.;Cella, D.
在对不同人群和亚组使用不同的患者报告结果(PRO)时，一个常见的问题是为不相称的结果建立一个统一的量表。不同专业人士之间在衡量指标(例如，原始总分和标度分数)上缺乏可比性，这给跨研究和样本比较效果的研究带来了实际挑战。长期以来，链接在教育测试中一直被用于实际利益。将各种链接技术应用于PRO数据的历史相对较短；然而，近年来，关于PRO和其他健康结果之间联系的公开研究激增，部分原因是共同努力，如患者报告的结果测量信息系统(PROIS(R))项目和PRO Rosetta Stone(PROSETA Stone(R))项目()。许多R包已被开发用于教育环境中的链接；然而，它们不是为链接PRO而量身定做的，在临床研究或环境中协调数据是主要目标。我们创建了PROsetta包来填补这一空白，并传播一项已被确立为联系专业人员的标准实践的协议。
A common problem when using a variety of patient-reported outcomes (PROs) for diverse populations and subgroups is establishing a harmonized scale for the incommensurate outcomes. The lack of comparability in metrics (e.g., raw summed scores vs. scaled scores) among different PROs poses practical challenges in studies comparing effects across studies and samples. Linking has long been used for practical benefit in educational testing. Applying various linking techniques to PRO data has a relatively short history; however, in recent years, there has been a surge of published studies on linking PROs and other health outcomes, owing in part to concerted efforts such as the Patient-Reported Outcomes Measurement Information System (PROMIS(R)) project and the PRO Rosetta Stone (PROsetta Stone(R)) project (). Many R packages have been developed for linking in educational settings; however, they are not tailored for linking PROs where harmonization of data across clinical studies or settings serves as the main objective. We created the PROsetta package to fill this gap and disseminate a protocol that has been established as a standard practice for linking PROs.