A Global Collaboration to Develop and Pilot Test a Mobile Application to Improve Cancer Pain Management in Nepal.

A Global Collaboration to Develop and Pilot Test a Mobile Application to Improve Cancer Pain Management in Nepal.
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DOI:
10.3389/fpain.2022.910995
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发表时间:
2022
期刊:
Frontiers in pain research (Lausanne, Switzerland)
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其他
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注重舒适和症状控制的优质姑息治疗可以减少全球癌症等非传染性疾病的痛苦。为了满足这一需求,尼泊尔姑息治疗协会(NAPCare)制定了疼痛管理指南(PMG),以支持医疗保健提供者评估和治疗严重疼痛。《国家艾滋病方案》的项目管理小组以世界卫生组织的最佳做法为基础,但根据尼泊尔的文化和资源情况进行了调整。NAPCare PMG的广泛采用受到限制,因为指南是作为纸质小册子分发的。基于美国和尼泊尔临床医生和研究人员之间的长期合作关系,NAPCare PMG移动的应用程序(“应用程序”)是合作设计的。尼泊尔的医疗服务提供者被招募来使用患者案例研究对该应用程序进行试点测试。然后,参与者完成了Qualtrics调查,以评估应用程序,其中包括系统可用性量表(SUS)和从移动的应用程序评级量表(MARS)中选择的项目。计算描述性和汇总统计量,并在机构和角色之间进行比较。还进行了回归分析,以探索选定的人口统计学变量与SUS和MARS评分之间的关系(α = 0.05)。98名医疗保健提供者(n = 98)对NAPCare PMG应用程序进行了试点测试。总体而言,在机构和角色之间,该应用程序的SUS评分为76.0(评分> 68被认为高于平均水平),MARS评分为4.10(1 =差,5 =优秀)。89.8%(n = 88)“同意”或“强烈同意”该应用程序将帮助他们更好地管理癌症疼痛。年龄、经验年限和姑息治疗培训在预测SUS评分方面具有显著性(p值分别为0.0124、0.0371和0.0189);机构在预测MARS评分方面具有显著性(p = 0.0030)。NAPCare PMG移动的应用程序广受欢迎,参与者在SUS和MARS上都给予了高度评价。回归分析表明,在低资源环境下设计和评估移动的应用程序时,最终用户变量是需要考虑的重要因素。我们的应用程序设计和试点测试过程说明了跨全球合作的好处,以建立研究能力,并在当地环境中产生知识。
Quality palliative care, which prioritizes comfort and symptom control, can reduce global suffering from non-communicable diseases, such as cancer. To address this need, the Nepalese Association of Palliative Care (NAPCare) created pain management guidelines (PMG) to support healthcare providers in assessing and treating serious pain. The NAPCare PMG are grounded in World Health Organization best practices but adapted for the cultural and resource context of Nepal. Wider adoption of the NAPCare PMG has been limited due to distribution of the guidelines as paper booklets. Building on a long-standing partnership between clinicians and researchers in the US and Nepal, the NAPCare PMG mobile application (“app”) was collaboratively designed. Healthcare providers in Nepal were recruited to pilot test the app using patient case studies. Then, participants completed a Qualtrics survey to evaluate the app which included the System Usability Scale (SUS) and selected items from the Mobile App Rating Scale (MARS). Descriptive and summary statistics were calculated and compared across institutions and roles. Regression analyses to explore relationships (α = 0.05) between selected demographic variables and SUS and MARS scores were also conducted. Ninety eight healthcare providers (n = 98) pilot tested the NAPCare PMG app. Overall, across institutions and roles, the app received an SUS score of 76.0 (a score > 68 is considered above average) and a MARS score of 4.10 (on a scale of 1 = poor, 5 = excellent). 89.8% (n = 88) “agreed” or “strongly agreed” that the app will help them better manage cancer pain. Age, years of experience, and training in palliative care were significant in predicting SUS scores (p-values, 0.0124, 0.0371, and 0.0189, respectively); institution was significant in predicting MARS scores (p = 0.0030). The NAPCare PMG mobile app was well-received, and participants rated it highly on both the SUS and MARS. Regression analyses suggest end-user variables important to consider in designing and evaluating mobile apps in lower resourced settings. Our app design and pilot testing process illustrate the benefits of cross global collaborations to build research capacity and generate knowledge within the local context.
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