Some Ethical and Methodological Issues in Research with People with Learning Difficulties
Some Ethical and Methodological Issues in Research with People with Learning Difficulties
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学习困难者研究中的一些伦理和方法论问题
DOI：
10.1080/09687599826885
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发表时间：
1998
影响因子：
2.4
通讯作者：
Kirsten Stalker
中科院分区：
文献类型：
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作者：
Kirsten Stalker
摘要本文讨论了最近一项研究中出现的一些伦理和方法论问题，该研究考察了学习困难者的选择行为。这项研究旨在详细研究选择的过程，并探讨如何让学习困难的人既作为受访者，又作为研究设计的贡献者。各种各样的困境都被排除了，包括如何从有严重缺陷的人那里获得知情同意，在人们自己家里进行研究时被侵入的风险，以及提高继续友谊的期望的危险。报告强调了在分析数据和传播调查结果时问责制的重要性。研究小组成立，成员包括两名有学习困难的人士，为研究提供指导。已采取步骤，但还不够，以便利他们参加会议。反思在这项研究中获得的经验和其他地方报道的研究，未来的一些指针…
ABSTRACT This paper discusses some ethical and methodological issues which arose in a recent study examining the exercise of choice by people with learning difficulties. The research aimed to examine in detail the choice-making process, and to explore ways of involving people with learning difficulties both as respondents and as contributors to the study design. Various dilemmas were encountered-including how to gain informed consent from people with profound impairment, the risk of intrusion when conducting research in people's own homes, and the dangers of raising expectations of continuing friendship. The importance of accountability when analysing data and disseminating findings is highlighted. A Research Advisory Group, including two people with learning difficulties, was set up to give guidance on the study. Steps were taken, but not enough, to facilitate their involvement in the meetings. Reflecting on experience gained in this study and on research reported elsewhere, a number of pointers for futu...