Stigma Associated with Parenting an Autistic Child with Aggressive Behaviour: a Systematic Review
Stigma Associated with Parenting an Autistic Child with Aggressive Behaviour: a Systematic Review
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与养育具有攻击性行为的自闭症儿童相关的耻辱：系统回顾
DOI：
10.1007/s40489-021-00292-5
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发表时间：
2021
影响因子：
3.8
通讯作者：
L. Campbell
中科院分区：
文献类型：
--
作者：
L. Swaab;J. Goodwin;Jaime Wroe;A. Woolard;L. McCormack;L. Campbell
背景越来越多的研究关注具有攻击性行为的自闭症个体。与其他发育障碍或一般人群相比，自闭症患者的攻击行为更常见。最常见的攻击行为类型是自我伤害行为、攻击他人和破坏财产。攻击性行为可能威胁到获得支助服务和教育的机会。父母因其子女的诊断或观察到的攻击行为（例如无知、偏见和歧视）而遭受许多类型的耻辱。本系统综述的目的是综合目前的研究，自闭症儿童的父母表现出攻击性行为的耻辱的经验。这篇评论所解决的具体问题是“有攻击行为的自闭症儿童的父母是否经历了耻辱？”这次审查发现，成见有多种形式，造成这些家庭比一般人口和其他残疾人更大的压力和更差的生活质量。方法利用多个在线数据库、灰色文献和手工检索对已发表的英文文献进行检查。该审查是根据PRISMA指南进行和报告的。研究调查的家庭成员的儿童诊断为自闭症谁表现出攻击性行为包括在内。另一个标准是，参与者因为他们的孩子的自闭症和/或攻击行为而经历了某种形式的耻辱。所有符合标准的研究都得到了严格的评价。截至2019年2月6日，对发布日期没有限制。结果总搜索结果产生了5707条记录。其中，确定并审查了9项研究。两个被确定为混合方法设计，其余七个是定性设计。尽管不同的研究方法，研究问题，采访指南，在年龄范围和出版年份的变化很大，与照顾一个自闭症儿童的攻击性行为的耻辱一致确定。总之，现有的研究文献表明，自闭症患者和他们的家庭经历高水平的耻辱。对于行为具有攻击性的自闭症儿童的父母来说，耻辱感更加突出和具有侵犯性。这项系统性综述可以得出结论，自闭症、攻击性和耻辱感这三个因素还没有得到很好的理解，而且调查不足。
Background There is a growing body of research focused on autistic individuals who present with aggressive behaviour. Aggressive behaviour has been found to occur more frequently in autism compared with other developmental disabilities or the general population. The most common types of aggressive behaviours are self-injurious behaviours, aggression towards others and the destruction of property. Aggressive behaviour can threaten access to support services and education. Many types of stigma are experienced by parents as a result of their child’s diagnosis or observed aggressive behaviour (e.g. ignorance, prejudice and discrimination). The aim of this systematic review was to synthesise the current research into the experience of stigma by parents of autistic children who display aggressive behaviour. The specific question addressed by this review was ‘Do parents of autistic children with aggressive behaviours experience stigma?’. This review found that stigma is experienced in many forms and contributes to higher levels of stress and poorer quality of life for these families than for the general population and other disabilities. Methods The published English-language literature was examined using multiple online databases, grey literature and hand searches. The review was conducted and reported using PRISMA guidelines. Studies investigating family members of children with a diagnosis of autism who exhibited aggressive behaviour were included. An additional criterion was that the participants had experienced some form of stigma because of their child’s autism and/or aggressive behaviour. All studies that met the criteria were critically appraised. No limits were applied for date of publication up until February 6, 2019. Results Total search results yielded 5707 records. Of these, nine studies were identified and reviewed. Two were identified as mixed method designs and the remaining seven were qualitative designs. Despite diverse research methods, research questions, interview guides, a large variation in age range and year of publication, the stigma associated with caring for an autistic child with aggressive behaviour was consistently identified. Conclusions Taken together, the available research literature suggests that autistic people and their families experience high levels of stigma. For parents of autistic children who behave aggressively, stigma is even more prominent and invasive. This systematic review can conclude that this triad of autism, aggression and stigma is not well understood and is under-investigated.
影响因子：
2.5
作者：
Hill AP;Zuckerman KE;Hagen AD;Kriz DJ;Duvall SW;van Santen J;Nigg J;Fair D;Fombonne E
通讯作者：
Fombonne E