"I feel like I need to split myself in half": Using Role Theory to Design for Parents as Caregiving Teams in the Children's Hospital
"I feel like I need to split myself in half": Using Role Theory to Design for Parents as Caregiving Teams in the Children's Hospital
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DOI：
10.1145/3500868.3559466
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发表时间：
2022-11
期刊：
影响因子：
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通讯作者：
Sarah Nikkhah;A. Rode;Priyanjali Mittal;Neha K. Kulkarni;Salonee Nadkarni;Emily L. Mueller;Andrew D. Miller
中科院分区：
文献类型：
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作者：
Sarah Nikkhah;A. Rode;Priyanjali Mittal;Neha K. Kulkarni;Salonee Nadkarni;Emily L. Mueller;Andrew D. Miller
当孩子住院时，父母除了现有的家庭和工作相关职责外，还要承担新的看护角色。 CSCW 之前的研究已经展示了技术如何支持看护，但需要更多的研究来系统地了解技术如何支持父母和其他家庭看护者在相互合作中扮演新的协调角色。本文报告了对因癌症住院治疗的儿童父母进行的访谈研究的结果。我们使用社会科学的角色理论框架来展示父母在住院期间如何采取和扮演护理角色，以及他们在适应这种压力情况时所经历的挑战。我们展示了父母在试图划分看护工作并引入“看护者间信息差异”概念时如何经历“角色紧张”。我们提出了护理协调技术的设计机会，以更好地支持多护理人员团队中的护理角色。
When their child is hospitalized, parents take on new caregiving roles, in addition to their existing home and work-related responsibilities. Previous CSCW research has shown how technologies can support caregiving, but more research is needed to systematically understand how technology could support parents and other family caregivers as they adopt new coordination roles in their collaborations with each other. This paper reports findings from an interview study with parents of children hospitalized for cancer treatment. We used the Role Theory framework from the social sciences to show how parents adopt and enact caregiving roles during hospitalization and the challenges they experience as they adapt to this stressful situation. We show how parents experience 'role strain' as they attempt to divide caregiving work and introduce the concept of 'inter-caregiver information disparity.' We propose design opportunities for caregiving coordination technologies to better support caregiving roles in multi-caregiver teams.