Teaching Requesting to Individuals with Rett Syndrome Using Alternative Augmentative Communication (AAC) Through Caregiver Coaching via Telehealth.
Teaching Requesting to Individuals with Rett Syndrome Using Alternative Augmentative Communication (AAC) Through Caregiver Coaching via Telehealth.
复制标题
通过远程医疗的护理人员指导，使用替代性增强沟通 (AAC) 向雷特综合症患者教授请求。
DOI：
10.1007/s10882-023-09894-9
复制
发表时间：
2023
影响因子：
1.8
通讯作者：
Shipchandler,AlefyahH
中科院分区：
文献类型：
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作者：
Kolb,RebeccaL;McComas,JenniferJ;Girtler,ShawnN;Simacek,Jessica;Dimian,AdeleF;Unholz-Bowden,EmilyK;Shipchandler,AlefyahH
雷特综合征是一种严重的神经发育障碍，会导致运动和语言技能退化，症状表现的严重程度各不相同。由于语言、运动技能下降和运动规划困难是该疾病的特征，沟通干预对于该人群来说尤其具有挑战性（Townend 等人），通常导致需要增强和替代沟通 (AAC) 技术。对雷特综合征患者的沟通干预进行评估的研究非常有限，而针对表达性沟通进行评估的研究则更少，而表达性沟通是提高自主性和生活质量所需的一项重要技能（Sigafoos 等人；Townend 等人）。当前的研究试图系统地复制 Simacek 等人的研究。 研究人员通过远程医疗对护理人员进行指导，要求开展培训程序，教三名患有雷特综合症的女孩使用 AAC 提出请求。结果表明，要求培训成功地增加了所有三名参与者的 AAC 使用率。讨论了对该人群进行干预的障碍以及结果对未来研究和临床实践的影响。
Rett syndrome is a severe neurodevelopmental disorder that results in both motor and language skill regression with a wide range of severity in symptom presentation. Communication intervention may be particularly challenging for this population due to the decline in speech, motor skills, and motor planning difficulties that characterize the disorder (Townend et al., ), often resulting in the need for augmentative and alternative communication (AAC) technology. Very limited research has evaluated communication interventions for individuals with Rett syndrome and even fewer have targeted expressive communication, an important skill required for improved autonomy and quality of life (Sigafoos et al., ; Townend et al., ). The current study sought to systematically replicate the Simacek et al. mand training procedures to teach three girls with Rett Syndrome to use AAC to make requests through caregiver coaching by researchers via telehealth. Results suggest that mand training was successful in increasing AAC use for all three participants. Barriers to intervention for this population and implications of results for future research and clinical practice are discussed.