The psychosocial experience of patients with end-stage renal disease and its impact on quality of life: findings from a needs assessment to shape a service.
The psychosocial experience of patients with end-stage renal disease and its impact on quality of life: findings from a needs assessment to shape a service.
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DOI：
10.5402/2013/308986
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发表时间：
2013-01-01
期刊：
影响因子：
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通讯作者：
Thomas, Veronica J
中科院分区：
文献类型：
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作者：
Finnegan-John, Jennifer;Thomas, Veronica J
背景对在伦敦一家领先的医院信托登记的肾病患者进行需求评估，以探讨他们的心理、社会和精神需求。需求评估的目的是建立一个证据基础，以发展一个全面的健康心理服务，同时在部门内的肾脏辅导支持服务。方法论这项研究利用了一系列半结构化的面对面访谈和焦点小组与肾脏病患者及其照顾者，探讨如何影响生活质量的终末期肾病。结果进行了专题分析。七个新兴的主题，影响与EDRD的人的生活质量：生理影响，治疗的影响，对日常生活的影响，心理影响，对关系的影响，社会影响和应对措施。结论需求评估明确指出，终末期肾病带来了情感、身体、心理、社会和生存方面的负担。这项需求评估研究的数据为这家英国领先的医院建立未来的健康心理学服务提供了证据基础。
Background. A needs assessment was conducted on renal patients registered to a leading hospital trust in London in order to explore their psychological, social, and spiritual needs. The aim of the needs assessment was to create an evidence base for the development of a comprehensive health psychology service to run concurrently with a renal counselling support service within the department. Methodology. This study utilised a series of semistructured face-to-face interviews and focus groups with renal patients and their carers, to explore how ESRD impacted quality of life. Results. A thematic analysis was undertaken. Seven emergent themes were identified that influenced the quality of life of people with EDRD: physiological impact, impact of treatment, impact on daily life, psychological impact, impact on relationships, social impact and coping responses. Conclusion. The needs assessment clearly identified that ESRD carries with it emotional, physical, psychological, social, and existential burdens. The data from this needs assessment study has created an evidence base upon which future health psychology services can be built within this leading UK hospital.