User-Centered Design Groups to Engage Patients and Caregivers with a Personalized Health Information Technology Tool
User-Centered Design Groups to Engage Patients and Caregivers with a Personalized Health Information Technology Tool
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DOI：
10.1016/j.bbmt.2015.08.032
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发表时间：
2016-02-01
影响因子：
4.3
通讯作者：
Choi, Sung Won
中科院分区：
文献类型：
--
作者：
Maher, Molly;Kaziunas, Elizabeth;Choi, Sung Won
健康信息技术（IT）为捕获、交付和共享数据开辟了令人兴奋的途径，并为开发具有成本效益的、以患者为中心的应用程序提供了潜力。近年来，门诊门户等卫生信息技术应用激增。严格的评估是确保有效性和可持续性的基础，因为对更广泛采用门诊门户网站的抵制可能是由于缺乏用户友好性。与现有电子健康记录相结合并以简洁、用户友好的格式提供信息的健康信息技术应用程序可以改善护理和沟通的协调。重要的是，这些应用程序应系统地开发，并进行适当的方法设计和测试，以确保有用性、采用率和可持续性。基于我们之前的工作，确定了大量的信息需求和挑战的HCT，我们开发了一个实验原型的健康IT工具，BMT路线图。我们的目标是开发一种工具，可以在现实世界中使用，HCT患者和护理人员（用户）在住院设置的日常实践。在此，我们通过以用户为中心的设计小组，在BMT路线图的设计和开发过程中检查了用户的观点，需求和愿望。出现了三个重要主题：1）将核心功能视为有益的（视图），2）提醒设计团队用户界面的潜在问题（需求）;以及3）从更广泛的心理社会要求（愿望）方面对用户体验进行更深入的了解。这些发现导致了改进的功能性BMT Roadmap产品的变化，该产品将于2015年秋季在儿科HCT人群中进行干预测试（ClinicalTrials.gov NCT 02409121）。(C)2016年美国血液和骨髓移植协会。
Health information technology (IT) has opened exciting avenues for capturing, delivering and sharing data, and offers the potential to develop cost-effective, patient-focused applications. In recent years, there has been a proliferation of health IT applications such as outpatient portals. Rigorous evaluation is fundamental to ensure effectiveness and sustainability, as resistance to more widespread adoption of outpatient portals may be due to lack of user friendliness. Health IT applications that integrate with the existing electronic health record and present information in a condensed, user-friendly format could improve coordination of care and communication. Importantly, these applications should be developed systematically with appropriate methodological design and testing to ensure usefulness, adoption, and sustainability. Based on our prior work that identified numerous information needs and challenges of HCT, we developed an experimental prototype of a health IT tool, the BMT Roadmap. Our goal was to develop a tool that could be used in the real-world, daily practice of HCT patients and caregivers (users) in the inpatient setting. Herein, we examined the views, needs, and wants of users in the design and development process of the BMT Roadmap through user-centered Design Groups. Three important themes emerged: 1) perception of core features as beneficial (views), 2) alerting the design team to potential issues with the user interface (needs); and 3) providing a deeper understanding of the user experience in terms of wider psychosocial requirements (wants). These findings resulted in changes that led to an improved, functional BMT Roadmap product, which will be tested as an intervention in the pediatric HCT population in the fall of 2015 (ClinicalTrials.gov NCT02409121). (C) 2016 American Society for Blood and Marrow Transplantation.