Dementia in Relation to Family Caregiver Involvement and Burden in Long-Term Care

Dementia in Relation to Family Caregiver Involvement and Burden in Long-Term Care
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DOI:
10.1177/0733464813505701
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发表时间:
2014-08-01
影响因子:
3
通讯作者:
Gwyther, Lisa P.
Gwyther, Lisa P.
中科院分区:
医学3区
文献类型:
--
作者:
Cohen, Lauren W.;Zimmerman, Sheryl;Gwyther, Lisa P.

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为了更好地了解患有不同阶段痴呆症的长期护理居民的家庭参与的过程和结果,我们分析了24个住宅护理/辅助生活和养老院设置的467名居民的家庭和工作人员数据。调整后的分析发现,虽然家庭探视的数量没有显着变化的居民认知状态(15与20访问/月的人与痴呆症,分别),访问的性质。认知完整的居民的家庭花更多的时间在与社会和社区参与相关的活动上,例如带居民旅行,打电话和写信(p < .001),而受损居民的家庭花费更多的时间在护理相关活动上,包括与营养相关的任务(p < .027)、流动性(p = .001)和与工作人员讨论护理(p = .007),后者与更大的负担相关(p < .001)。工作人员发现了类似的模式,但认为较少的家庭参与。
To better understand the process and outcomes of family involvement for long-term care residents with varying stages of dementia, we analyzed family and staff data for 467 residents of 24 residential care/assisted living and nursing-home settings. Adjusted analyses found that although the amount of family visitation did not significantly vary by resident cognitive status (15 versus 20 visits/month to persons with and without dementia, respectively), the nature of the visit did. Families of cognitively intact residents spent more time in activities related to social and community engagement, such as taking residents on trips and calling and writing letters (p < .001), while families of more impaired residents spent more time on care-related activities, including tasks related to nutrition (p < .027), mobility (p = .001), and discussing care with staff (p = .007), the latter of which was associated with greater burden (p < .001). Staff identified similar patterns but perceived less family involvement.