Psychosocial Screening for Siblings of Children With Cancer: Barriers and Preferences
Psychosocial Screening for Siblings of Children With Cancer: Barriers and Preferences
复制标题
对癌症儿童兄弟姐妹进行心理社会筛查：障碍和偏好
DOI：
--
复制
发表时间：
2017
期刊：
影响因子：
--
通讯作者：
M. Alderfer
中科院分区：
文献类型：
--
作者：
Kristin A Long;Emily M. Pariseau;A. Muriel;Andrea Chu;A. Kazak;M. León;M. Alderfer
尽管许多兄弟姐妹在面对儿童癌症时表现出了弹性，但其他人在癌症治疗期间和之后报告了临床水平的痛苦。建议对兄弟姐妹进行心理社会护理，但系统筛查以确定目前正在经历或有可能出现心理社会困难的兄弟姐妹并非常规做法。作为一项研究计划的一部分，制定可行的程序，兄弟姐妹筛查，目前的研究使用定性方法收集的观点，父母和兄弟姐妹的障碍，兄弟姐妹心理社会筛查，减轻这些障碍的方法，和首选的筛查程序。一个有目的的样本的癌症儿童的家庭（n = 29的父母，n = 17的兄弟姐妹年龄8-17）参加了半结构化的定性访谈。兄弟姐妹筛查的障碍和偏好（例如，时间、位置、模态）进行探测。应用主题分析来提炼研究结果。家庭报告强烈需要兄弟姐妹心理社会筛查，但也报告了障碍（即，家庭破裂和分离，父母压力，兄弟姐妹和父母不愿透露情感困难）。提出了消除这些障碍的建议。同胞筛查是首选近诊断和此后每三个月。父母和兄弟姐妹的报告都被推荐。首选方式包括在医院/诊所（父母）和临床访谈（兄弟姐妹）提供的电子问卷。总之，家庭强调了兄弟姐妹心理社会筛查的重要性，并提出了实现这一目标的方法。让家庭参与制定程序，系统地筛查患有癌症的儿童的兄弟姐妹的心理社会困难，是制定可行的，有效的战略，以确定需要临床护理的兄弟姐妹的重要一步。
Although many siblings show resilience in the face of childhood cancer, others report clinical levels of distress during and after cancer treatment. Psychosocial care is recommended for siblings, but systematic screening to identify siblings currently experiencing or at-risk for psychosocial difficulties is not routine. As part of a program of research to develop feasible procedures for sibling screening, the current study used qualitative methods to gather the perspectives of parents and siblings regarding barriers to sibling psychosocial screening, ways to mitigate those barriers, and preferred screening procedures. A purposive sample of families of children with cancer (n = 29 parents, n = 17 siblings ages 8–17) participated in semistructured qualitative interviews. Barriers to and preferences for sibling screening (e.g., timing, location, modality) were probed. Applied thematic analysis was used to distill findings. Families reported a strong need for sibling psychosocial screening but also reported barriers (i.e., family disruptions and separations, parental stress, and hesitancy to disclose emotional difficulties by both siblings and parents). Recommendations for addressing these barriers were provided. Sibling screening was preferred near diagnosis and every three months thereafter. Parent and sibling reports were both recommended. Preferred modalities included electronic questionnaire delivered in the hospital/clinic (parents) and clinical interview (siblings). In sum, families emphasized the importance of sibling psychosocial screening and suggested ways to achieve this. Involving families in the development of procedures to systematically screen siblings of children with cancer for psychosocial difficulties is an important step in developing feasible, effective strategies to identify siblings in need of clinical care.