Conversations at the edge of play: media, communication and cultural intersections with dementia

Conversations at the edge of play: media, communication and cultural intersections with dementia
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DOI:
10.1080/10304312.2017.1370075
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发表时间:
2017-01-01
影响因子:
0.8
通讯作者:
Treadaway, Cathy
Treadaway, Cathy
中科院分区:
人文科学4区
文献类型:
--
作者:
Kenning, Gail;Treadaway, Cathy

文献摘要

被引文献

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全球人口的平均年龄正在显著增加。预计痴呆症的发病率也将上升,这将影响整个社会以及个人,他们将发现自己是一个或多个患有这种疾病的家庭成员的主要照顾者。痴呆症是一种耻辱,不会公开讨论。讨论继续由生物医学方法主导,这些方法侧重于与疾病作斗争的必要性,往往使个人感到准备不足,无力采取行动。本文报道了一种与物质文化生产相结合的创新方法;它使用纺织品作为媒介,鼓励人们分享他们的痴呆症个人经历。该试点项目让公众参与定制感官对象的制作,以促进晚期痴呆症患者的即时快乐,同时促进与参与制作过程的参与者正式和非正式地交流有关痴呆症的信息。研究发现,虽然参与者对痴呆症的个人知识和理解差异很大,但每个参与者都能够做出贡献,分享他们的知识,并通过活动获得权力。
The mean age of the global population is increasing significantly. Incidences of dementia are also predicted to rise and this will impact society as a whole as well as individuals, who will find they are primary carers for one or more family members with the disease. Dementia carries a stigma and is not openly discussed. Discourse continues to be led by bio-medical approaches that focus on the need to fight' the disease and often leaves individuals feeling ill-prepared and powerless to act. This paper reports on an innovative approach that engages with material culture production; it uses textiles as media to encourage people to share their personal experiences of dementia. The pilot project involved the general public in the making of bespoke sensory objects to promote in the moment pleasure' for people with later stage dementia, while facilitating an exchange of information about dementia both formally and informally with participants engaged in the making process. The study found that while participants' individual knowledge and understanding of dementia varied significantly, each participant was able to contribute, share their knowledge and become empowered through activity.