Perceptions of participation: Child patients with a disability in the doctor-parent-child partnership
Perceptions of participation: Child patients with a disability in the doctor-parent-child partnership
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DOI：
10.1016/j.pec.2008.07.031
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发表时间：
2009-01-01
影响因子：
3.5
通讯作者：
Reddihough, Dinah S.
中科院分区：
文献类型：
--
作者：
Garth, Belinda;Murphy, Gregory C.;Reddihough, Dinah S.
目的：探讨如何医生的父母，孩子的伙伴关系是经验丰富的，如果孩子的病人被认为是一个contributor.Methods：定性方法，采用半结构化的访谈与33名参与者（9名儿科医生，14名家长，10名儿童8 - 72岁脑瘫）从儿科教学医院在维多利亚，澳大利亚。儿童没有被视为"平等"或"定期"的伙伴，因为有报告说，儿童之间的参与存在差异，每个儿童的逐步参与也存在差异。出现了三个类别的关系到孩子的位置的伙伴关系：创造一个空间，让孩子的参与;承认的变化，儿童的喜好参与;和谈判的孩子的年龄和development.Conclusion：医生-父母-孩子的伙伴关系被认为不一定是二元的，完全由父母和儿科医生共享。据报道，儿童的伙伴关系，虽然有限制的儿童的involvement.Practice的影响：以前的理解伙伴关系是不足以解释的复杂性，参与医生-父母-孩子的伙伴关系，和社会模式的方法来照顾被强调为一个重要因素，使发展的三元伙伴关系。皇冠版权所有（c）2008由爱思唯尔爱尔兰有限公司出版。保留所有权利。
Objective: To explore how the doctor-parent-child partnership is experienced and if the child patient is considered a contributor.Methods: Qualitative methodology using semi-structured interviews with 33 participants (9 paediatricians, 14 parents, and 10 children aged 8-72 with cerebral palsy) from a paediatric teaching hospital in Victoria, Australia.Results: Children were reported to participate in the do:tor-parent-child partnership. The child was not perceived to be an 'equal' or 'regular' partner as there were reports of variability in the involvement between children, as well as variability in the progressive involvement of each child. Three categories emerged in relation to the child's position in the partnership: creating a space for the child's involvement; acknowledging the variability of child preferences to be involved; and negotiating the child's age and development.Conclusion: The doctor-parent-child partnership was perceived not necessarily to be dyadic, shared exclusively by the parent and paediatrician. Children were reported to contribute to the partnership, although there were limitations to the child's involvement.Practice implications: Previous understandings of partnership are not sufficient to explain the complexities involved in a doctor-parent-child partnership, and a social-model approach to care is highlighted as an important factor for enabling the development of a triadic partnership. Crown Copyright (c) 2008 Published by Elsevier Ireland Ltd. All rights reserved.