An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical congenital heart disease.
An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical congenital heart disease.
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一个移动健康，病人参与的方法，以了解和解决父母的心理健康和产前诊断后的严重先天性心脏病的生存需求。
DOI：
10.1016/j.pecinn.2023.100213
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发表时间：
2023-12-15
期刊：
影响因子：
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通讯作者：
Pridham, Karen F
中科院分区：
文献类型：
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作者：
McKechnie, Anne Chevalier;Elgersma, Kristin M;Iwaszko Wagner, Taylor;Trebilcock, Anna;Damico, Jenna;Sosa, Alejandra;Ambrose, Matthew B;Shah, Kavisha;Sanchez Mejia, Aura A;Pridham, Karen F
概述为产前诊断患有严重先天性心脏病的父母设计的准备心脏和心智™(PHM™)护理计划的发展，并描述父母关注的问题、照顾能力以及PHM™主题的类型和时机。指导参与理论支撑了干预发展和一种新的护士指导的mHealth干预的混合方法试点。父母是从怀孕的第三个月开始登记的-出生后12周。描述性地分析了在线调查、会议记录和应用程序使用情况。样本包括19名母亲/分娩者和15名随机进入干预组的照料者。在49次咨询中，精神健康/幸福感(94%)和具体情况信息(86%)是最重要的问题。培养了许多照料能力，母亲/分娩者往往专注于喂养(86%)。调节情绪和共同养育子女始终需要支持。PHM™讨论最多的话题是准备住院(47%)和处理不确定性(45%)。两个案例进一步说明了这一发现的特点。护士与家长对问题的协作理解强调了心理健康评估的必要性。通过讨论照料问题和PHM™主题，强调了产前干预的机会。PHM™代表了一种创新的方法，它承诺支持父母的心理健康和医疗保健以外的照看需求。在产前诊断后，父母的支持和信息是不一致的。父母在努力管理心理健康的同时，还面临着许多照顾方面的挑战。PHM™有望成为一种新的方法，让父母做好照顾者的准备。
To provide an overview of the development of the Preparing Heart and Mind™ (PHM™) care program designed for parents with a prenatal diagnosis of critical congenital heart disease (CCHD) and describe issues of parental concern, caregiving competencies, and type and timing of PHM™ topics. Guided participation theory underpinned intervention development and a mixed methods pilot of a novel, nurse-guided mHealth intervention. Parents were enrolled from the third trimester of pregnancy–12 weeks postnatally. Online surveys, session transcripts, and app use were descriptively analyzed. The sample included 19 mothers/birthing persons and 15 caregiving partners randomized to the intervention group. In 49 sessions, mental health/wellbeing (94%) and condition-specific information (86%) were top issues. Many caregiving competencies were developed, with mothers/birthing persons often focused on feeding (86%). Regulating emotions and co-parenting consistently needed support. PHM™ topics of preparing for hospitalization (47%) and handling uncertainty (45%) were most discussed. Two cases further characterize findings. Nurse-parent collaborative understanding of issues emphasized the need for mental health assessments. Prenatal intervention opportunities were underscored through discussions of caregiving issues and PHM™ topics. PHM™ represents an innovative approach that holds promise for supporting parents' mental health and caregiving needs outside the healthcare setting. Support and information for parents after a prenatal diagnosis are inconsistent. Parents struggle to manage mental health while facing many caregiving challenges. PHM™ holds promise as a novel approach to engage and prepare parents as caregivers.