A second national survey of health-related quality of life questionnaires in head and neck oncology

A second national survey of health-related quality of life questionnaires in head and neck oncology
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DOI:
10.1308/003588409x428306
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发表时间:
2009-07-01
影响因子:
1.4
通讯作者:
Rogers, Simon N.
Rogers, Simon N.
中科院分区:
医学4区
文献类型:
--
作者:
Kanatas, Anastasios N.;Mehanna, Hisham M.;Rogers, Simon N.

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随着越来越多的关于头颈部癌症后健康相关生活质量(HRQOL)的出版物,对一些经过充分验证的问卷的认可以及对HRQOL在实践中的潜在作用的日益认识,我们的目的是重复《年鉴》报道的2002年的调查,看看实践是如何改变的。头颈肿瘤学家于2006年1月进行了调查,并于2月、3月和4月发送了提醒。结果回复率为50%(210人中的106人),其中53%正在使用或曾经使用过HRQOL问卷。不使用HRQOL问卷调查的主要原因是,他们太耗时或侵入性的诊所设置,并有一个缺乏resources.CONCLUSIONS临床医生仍然看到使用问卷作为一种研究工具,而不是一个辅助给病人的信息,促进选择,并确定患者的问题。常规临床实践中HRQOL评价的负担仍然是一个重大障碍。临床IT支持的进步应该使未来更容易收集和使用这些数据。作为外科医生,我们仍然需要说服HRQOL结果在我们的实践中的好处。
INTRODUCTION With an increasing number of publications on health-related quality of life (HRQOL) following head and neck cancer, the recognition of a number of well-validated questionnaires and a growing awareness of the potential role of HRQOL in practice, it was our aim to repeat the survey of 2002 reported in the Annals to see how practice changed.MATERIALS AND METHODS A postal survey of members of the British Association of Head and Neck Oncologists was undertaken in January 2006 with reminders sent in February, March and April.RESULTS The response was 50% (106 of 210) of which 53% were using or had used HRQOL questionnaires. The main reasons for not using HRQOL questionnaires were that they were too time-consuming or intrusive in a clinic setting and that there was a lack of resources.CONCLUSIONS Clinicians still see the use of questionnaires as a research-tool only, rather than an adjunct to giving patient information, promoting choice, and identifying patients with problems. The burden on HRQOL evaluation in routine clinical practice remains a substantial barrier. Advances with IT support in clinic should make it easier to collect and use these data in the future. As surgeons, we still need to be persuaded of the benefits of HRQOL outcomes in our practice.