Quality of life and stigmatization profile in a cohort of vitiligo patients and effect of the use of camouflage
Quality of life and stigmatization profile in a cohort of vitiligo patients and effect of the use of camouflage
复制标题
DOI：
10.1159/000084751
复制
发表时间：
2005-01-01
期刊：
影响因子：
3.4
通讯作者：
Naeyaert, M
中科院分区：
文献类型：
--
作者：
Ongenae, K;Dierckxsens, L;Naeyaert, M
背景：很少有研究关注治疗干预对白癜风心理社会后果的影响。目的：量化和分析白癜风患者使用迷彩的心理社会效益。患者和方法：78例白癜风患者完成了皮肤病生活质量指数（DLQI）和一份适应的污名化问卷，其中62例患者在使用伪装剂至少1个月后完成了DLQI。结果：初始平均总DLQI评分（n = 78）为6.9 （SD 5.6）。全球平均污名化得分为38%。疾病程度和疾病严重程度是DLQI的强预测因子（p < 0.0001）。面部/头部/颈部的白癜风严重影响DLQI，与受累程度无关。使用伪装前后DLQI平均评分（n = 62）分别为7.3分（SD 5.6）和5.9分（SD 5.2; p = 0.006）。高分项目“尴尬感和自我意识”和“服装选择”的改善最为明显。改善的预测因子是更高的DLQI评分（p = 0.0005）和更高的总严重程度评分（p = 0.03）。结论：可以推荐伪装，特别是DLQI评分较高或自我评估疾病严重程度的患者。面部轻微受损的患者从伪装中获益。版权所有(c) 2005 S. Karger AG，巴塞尔。
Background: Few studies have paid attention to the effects of treatment interventions on the psychosocial consequences of vitiligo. Objectives: To quantify and analyse the psychosocial benefit of the use of camouflage in vitiligo patients. Patients and Methods: 78 vitiligo patients completed the Dermatology Life Quality Index (DLQI) and an adapted stigmatization questionnaire, and 62 of them completed the DLQI after at least a 1-month use of camouflage. Results: The initial mean overall DLQI score (n = 78) is 6.9 (SD 5.6). The mean global stigmatization score is 38%. Disease extent and disease severity are strong predictors of the DLQI (p < 0.0001). Vitiligo on the face/head/neck substantially affects the DLQI, independently of degree of involvement. The mean DLQI score before and after use of camouflage (n = 62) is 7.3 (SD 5.6) and 5.9 (SD 5.2; p = 0.006). Mainly the high-scoring items 'feelings of embarrassment and self consciousness' and' choice of clothing' improve. Predictors of improvement are higher DLQI scores (p = 0.0005) and higher total severity scores (p = 0.03). Conclusions: Camouflage can be recommended, particularly in patients with higher DLQI scores or self-assessed disease severity. Patients with minor involvement of the face benefit from camouflage. Copyright (c) 2005 S. Karger AG, Basel.