Symptom Communication Preferences and Communication Barriers for Young Adult Cancer Survivors and Their Health Care Providers.
Symptom Communication Preferences and Communication Barriers for Young Adult Cancer Survivors and Their Health Care Providers.
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年轻成年癌症幸存者及其医疗保健提供者的症状沟通偏好和沟通障碍。
DOI：
10.1089/jayao.2021.0172
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发表时间：
2022
影响因子：
2
通讯作者：
Oeffinger,KevinC
中科院分区：
文献类型：
--
作者：
Dorfman,CarolineS;Stalls,Juliann;Lachman,Sage;Shelby,RebeccaA;Somers,TamaraJ;Oeffinger,KevinC
目的：年轻成人（YA;年龄18-39岁）癌症幸存者与其医疗保健提供者之间的有效沟通对于管理治疗后症状至关重要。然而，鲜为人知的是YAs的和供应商的偏好和障碍症状communication，变量重要的发展干预措施，以改善和优化YA-供应商communication.Methods：YA幸存者（N= 21）和肿瘤学供应商（N= 11）的排名排序他们的首选方法的症状沟通和顶级沟通障碍。进行访谈以获得定性数据（即，改善症状沟通的首选方法、障碍和建议）。采访被转录，和专题定性分析used.Results：百分之六十二的YAs喜欢使用电子信息系统与医疗记录（MyChart）进行通信，而供应商（100%）喜欢在人的诊所访问期间进行通信。来自YAs的定性数据指出了MyChart的好处，包括易用性和快速响应。提供商承认，尽管高效，但高消息量和对快速响应的期望是MyChart的障碍。提供者描述了亲自访问的好处，包括直观地评估患者的担忧，提供即时支持，以及更安全地管理症状。缺乏时间（48%）是YAs的最大沟通障碍，而提供者支持患者不提出症状（64%）。定性数据反映了患者水平（例如，尴尬/不适、缺乏技能）和提供者级别（例如，忘记询问症状）障碍。YAs和供应商提供的策略，以改善communication.Conclusion：幸存者和供应商的水平的沟通干预，占YAs和供应商的不同的沟通偏好，并直接解决沟通障碍独特的幸存者的发展阶段可能是必要的，以改善症状的沟通。
Purpose:Effective communication between young adult (YA; aged 18–39 years) cancer survivors and their health care providers is critical for managing post-treatment symptoms. Yet, little is known about YAs' and providers' preferences for and barriers to symptom communication, variables important for developing interventions to improve and optimize YA–provider communication.Methods:YA survivors (N= 21) and oncology providers (N= 11) rank ordered their preferred methods for symptom communication and top communication barriers. Interviews were conducted to obtain qualitative data (i.e., preferred methods for, barriers, and suggestions to improve symptom communication). Interviews were transcribed, and thematic qualitative analysis was used.Results:Sixty-two percent of YAs preferred communicating using the electronic messaging system affiliated with the medical record (MyChart), whereas providers (100%) preferred communicating during in-person clinic visits. Qualitative data from YAs pointed to benefits of MyChart, including ease of use and rapid responses. Providers acknowledged that, although efficient, high message volumes and expectations for rapid responses were barriers to MyChart. Providers described benefits of in-person visits, including visually assessing patients' concerns, providing immediate support, and more safely managing symptoms. Lack of time (48%) was YAs' top communication barrier, whereas providers endorsed patients not bringing up symptoms (64%). Qualitative data reflected patient-level (e.g., embarrassment/discomfort, lack of skills) and provider-level (e.g., forgetting to ask about a symptom) barriers. YAs and providers offered strategies to improve communication.Conclusion:Survivor- and provider-level communication interventions that account for YAs' and providers' differing communication preferences and directly address communication barriers unique to survivors' developmental stage may be necessary to improve symptom communication.