Eye tracking communication devices in amyotrophic lateral sclerosis: Impact on disability and quality of life
Eye tracking communication devices in amyotrophic lateral sclerosis: Impact on disability and quality of life
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DOI：
10.3109/21678421.2013.803576
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发表时间：
2013-12-01
影响因子：
2.8
通讯作者：
Nardone, Antonio
中科院分区：
文献类型：
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作者：
Caligari, Marco;Godi, Marco;Nardone, Antonio
患有肌萎缩侧索硬化症（PwALS）的人表现出随意肌肉力量的进行性丧失。在晚期疾病中，运动和发声障碍严重阻碍了患者的人际交流。高科技设备，如眼动追踪通信设备（ETCD），用于帮助ALS后期的通信。我们试图在一组35名患有四肢瘫痪和构音障碍的晚期ALS患者中评价ETCD对患者残疾、生活质量（QoL）和用户满意度的影响。实施了以下量表：1）个人优先问题评估（IPPA）量表，分为三种情况：无设备、有ETCD和（如适用）有眼转移（ETRAN）板; 2）辅助设备的心理社会影响量表（PIADS）;和3）辅助技术满意度的魁北克用户评价（QUEST 2.0）。使用ETRAN，IPPA显示出与没有设备的条件相比交流能力的增加，但ETCD产生了进一步的显着增加。PIADS证明QoL大幅增加，QUEST 2.0显示用户对ETCD使用的满意度较高。总之，ETCD应考虑在晚期ALS四肢瘫痪和构音障碍，因为在这些患者中，他们可以减少沟通障碍，改善生活质量。
People with amyotrophic lateral sclerosis (PwALS) show progressive loss of voluntary muscle strength. In advanced disease, motor and phonatory impairments seriously hinder the patient's interpersonal communication. High-tech devices such as eye tracking communication devices (ETCDs) are used to aid communication in the later stages of ALS. We sought to evaluate the effect of ETCDs on patient disability, quality of life (QoL), and user satisfaction, in a group of 35 regular ETCD users in late-stage ALS with tetraplegia and anarthria. The following scales were administered: 1) the Individually Prioritized Problem Assessment (IPPA) scale, in three conditions: without device, with ETCD and, when applicable, with an Eye Transfer (ETRAN) board; 2) the Psychosocial Impact of Assistive Devices Scale (PIADS); and 3) the Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2.0). With ETRAN, IPPA showed an increase in communicative abilities with respect to the condition without device, but ETCD produced a further significant increase. PIADS evidenced a large increase of QoL, and QUEST 2.0 showed high user satisfaction with ETCD use. In conclusion, ETCDs should be considered in late-stage ALS with tetraplegia and anarthria, since in these patients they can reduce communication disability and improve QoL.