Initial evaluation of an electronic symptom diary for adolescents with cancer.
Initial evaluation of an electronic symptom diary for adolescents with cancer.
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DOI：
10.2196/resprot.2175
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发表时间：
2012-12-11
影响因子：
1.7
通讯作者：
Miaskowski C
中科院分区：
文献类型：
--
作者：
Baggott C;Gibson F;Coll B;Kletter R;Zeltzer P;Miaskowski C
最佳护理的提供取决于患者和临床医生之间关于不良症状的准确沟通。记录病人的症状需要依靠记忆，而记忆往往是不精确的。我们为患有癌症的青少年和年轻人（AYAs）开发了一种电子日记（eDiary），以记录症状。本文的目的是描述为癌症AYA设计的电子日记的实用性，包括移动的应用程序的可靠性，任何缺失记录数据的原因，患者对日常症状查询的依从率，以及患者对通过移动的手机收集症状数据的有用性和可接受性的看法。我们的团队开发了一个电子症状日记的基础上进行的采访与癌症AYA和他们的临床医生。该日记包括疼痛、恶心、呕吐、疲劳和睡眠的每日严重程度评级。每日评估其他选定身体后遗症的发生率。此外，患者选择描述他们的情绪。对10名AYA癌症患者进行了为期3周的电子日记试验。带有服务计划的移动的电话被借给了病人，他们被指示每天报告他们的症状。患者完成了一份简短的问卷调查，并接受了采访，以了解他们对电子日志的看法和遇到的任何技术困难。每日症状报告的总体依从性超过90%。年轻人经历了一些技术困难，并报告受益于每日症状报告。症状发生率很高，在症状和情绪报告中注意到相当大的患者间和患者内变异性。我们证明了电子日记的实用性，它可能有助于深入了解患者的症状模式，以促进有效的症状管理。
The delivery of optimal care depends on accurate communication between patients and clinicians regarding untoward symptoms. Documentation of patients’ symptoms necessitates reliance on memory, which is often imprecise. We developed an electronic diary (eDiary) for adolescents and young adults (AYAs) with cancer to record symptoms. The purpose of this paper is to describe the utility of an eDiary designed for AYAs with cancer, including dependability of the mobile application, the reasons for any missing recorded data, patients’ adherence rates to daily symptom queries, and patients’ perceptions of the usefulness and acceptability of symptom data collection via mobile phones. Our team developed an electronic symptom diary based on interviews conducted with AYAs with cancer and their clinicians. This diary included daily severity ratings of pain, nausea, vomiting, fatigue, and sleep. The occurrence of other selected physical sequelae was assessed daily. Additionally, patients selected descriptors of their mood. A 3-week trial of the eDiary was conducted with 10 AYA cancer patients. Mobile phones with service plans were loaned to patients who were instructed to report their symptoms daily. Patients completed a brief questionnaire and were interviewed to elicit their perceptions of the eDiary and any technical difficulties encountered. Overall adherence to daily symptom reports exceeded 90%. Young people experienced few technical difficulties and reported benefit from daily symptom reports. Symptom occurrence rates were high and considerable inter- and intra-patient variability was noted in symptom and mood reports. We demonstrated the utility of an eDiary that may contribute insight into patients’ symptom patterns to promote effective symptom management.