Enhancing the Validity of a Quality of Life Measure for Autistic People
Enhancing the Validity of a Quality of Life Measure for Autistic People
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DOI：
10.1007/s10803-017-3402-z
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发表时间：
2018-05-01
影响因子：
3.9
通讯作者：
Rodgers, Jacqui
中科院分区：
文献类型：
--
作者：
McConachie, Helen;Mason, David;Rodgers, Jacqui
准确测量生活质量 (QoL) 对于评估自闭症服务和干预试验非常重要。我们对世界卫生组织的衡量标准 WHOQoL-BREF 进行了心理测量验证，检查了世界卫生组织残疾模块的结构有效性，并通过与自闭症社区的广泛咨询开发了九个额外的自闭症特定项目 (ASQoL)。 309 名自闭症患者样本是从英国成人自闭症谱系队列中招募的。 WHOQoL-BREF 具有良好的心理测量特性，包括标准效度、收敛效度、发散效度和判别效度。世界卫生组织残疾模块显示出足够的结构有效性和可靠性。 ASQoL 项目构成 QoL 的单一因素，具有一个全局项目。未来的研究可以使用世界卫生组织的措施和 ASQoL 项目来衡量自闭症患者的生活质量。
Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure-WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people.