"It's Feasible to Write a Song": A Feasibility Study Examining Group Therapeutic Songwriting for People Living With Dementia and Their Family Caregivers

"It's Feasible to Write a Song": A Feasibility Study Examining Group Therapeutic Songwriting for People Living With Dementia and Their Family Caregivers
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DOI:
10.3389/fpsyg.2020.01951
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发表时间:
2020-08-07
影响因子:
3.8
通讯作者:
Tamplin, Jeanette
Tamplin, Jeanette
中科院分区:
心理学3区
文献类型:
--
作者:
Clark, Imogen N.;Stretton-Smith, Phoebe A.;Tamplin, Jeanette

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背景对痴呆症患者及其家庭照顾者的心理社会干预可能会维持关系质量和社会联系。以前的音乐治疗研究没有研究过痴呆症患者/家庭照顾者二人组参加的团体治疗歌曲创作(TSW)的影响。方法这项前后可行性研究的目的是检查一组TSW干预对痴呆症/家庭照顾者二人组的可接受性,并测试以下结果的敏感性:(四年期全面政策审查,初级);康奈尔痴呆症抑郁量表(CSDD)和生活质量-痴呆症患者的阿尔茨海默氏症,患者健康问卷-9,生活质量评估-8维(AQoL-8D);和家庭照顾者的Zarit负担访谈。每周六次1小时的课程引导参与者识别首选音乐、集思广益、创作歌词和录制歌曲。定性访谈进行了二人组谁完成了干预。结果招募了14个二联体,并完成了基线评估。痴呆患者年龄在62-92岁之间(M= 77,SD = 11)。照顾者参与者(11名配偶,2名女儿,1名儿子)年龄在54-92岁之间(M= 67,SD = 10.1)。四对夫妇退出,由于健康状况下降或不便之前的程序开始(n= 2)和参加1-2届(n= 2)。10对形成4个同质TSW组(71%完成)。任何测量均未检测到统计学显著变化。基线(M= 57.1)和随访(M= 57.4)时的高QCPR评级表明持续的关系质量。对于患有痴呆症的参与者,CSDD的大效应量表明抑郁减少(d= -0.83)和情绪改善(d= -0.88)的趋势。对于家庭照顾者,较大的效应量表明,AQoL-8D子域检查独立生活有改善的趋势(d= -0.93)。定性数据表明,会议的设计和交付是可以接受的,和TSW是一个积极的共享经验与个人利益,支持,而不是改变关系质量。结论高保留率和定性数据表明TSW受到参与者的好评。效应量表明,组TSW的二人可能有有益的影响,抑郁症的人与痴呆症和家庭照顾者的生活质量。未来的研究与充分的动力样本,建议进一步研究组TSW的心理社会影响的人生活与痴呆症/家庭照顾者的二人组。
Background Psychosocial interventions for people with dementia and their family caregivers together may sustain relationship quality and social connection. No previous music therapy research has examined the effects of group therapeutic songwriting (TSW) attended by people with dementia/family caregiver dyads. Methods This pre-post feasibility study aimed to examine the acceptability of a group TSW intervention for people with dementia/family caregiver dyads and test the sensitivity of the following outcomes: Quality of the Caregiver-Patient Relationship (QCPR, primary); Cornell Scale for Depression in Dementia (CSDD) and Quality of Life-Alzheimer's Dementia for people with dementia, Patient Health Questionnaire-9, Assessment of Quality of Life-8 Dimensions (AQoL-8D); and Zarit Burden Interview for family caregivers. Six weekly 1 h sessions guided participants to identify preferred music, brainstorm ideas, create lyrics, and record songs. Qualitative interviews were conducted with dyads who completed the intervention. Results Fourteen dyads were recruited and completed baseline assessments. Participants with dementia were aged 62-92 years (M= 77, SD = 11). Caregiver participants (11 spouses, two daughters, one son) were aged 54-92 years (M= 67, SD = 10.1). Four dyads withdrew owing to declining health or inconvenience before the program commenced (n= 2) and after attending 1-2 sessions (n= 2). Ten dyads formed four homogeneous TSW groups (71% completion). No statistically significant changes were detected for any measure. High QCPR ratings at baseline (M= 57.1) and follow-up (M= 57.4) demonstrated sustained relationship quality. For participants with dementia, large effect sizes for the CSDD suggested trends toward decreased depression (d= -0.83) and improved mood (d= -0.88). For family caregivers, a large effect size suggested a trend toward improvement for the AQoL-8D sub-domain examining independent living (d= -0.93). Qualitative data indicated that session design and delivery were acceptable, and TSW was a positive shared experience with personal benefits, which supported rather than changed relationship quality. Conclusion High retention and qualitative data indicate that TSW was well received by participants. Effect sizes suggest that group TSW for dyads may have beneficial impacts on depression for people with dementia and quality of life for family caregivers. Future research with a fully powered sample is recommended to further examine the psychosocial impacts of group TSW for people living with dementia/family caregiver dyads.