Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda
Ethics in Community-Based Research with Vulnerable Children: Perspectives from Rwanda
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DOI：
10.1371/journal.pone.0157042
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发表时间：
2016-06-28
期刊：
影响因子：
3.7
通讯作者：
Binagwaho, Agnes
中科院分区：
文献类型：
--
作者：
Betancourt, Theresa;Fawzi, Mary C. Smith;Binagwaho, Agnes
一个“伤害的风险”议定书，以确定需要立即紧急援助的精神健康和艾滋病毒在卢旺达的680名10-17岁的青年之间的研究青年。案例描述了使用该协议的经验，以确保参与者的安全，考虑到道德和后勤挑战。在这项研究的人群中，3.2%被认为是“伤害风险”。“最普遍的问题是非致命的自杀行为（91%的伤害案例风险），36%的人有报告的既往尝试史。挑战包括：严重的粮食不安全/严重贫困;缺乏家庭成员的支持/适当监督;家庭暴力;酗酒;以及与艾滋病毒有关的耻辱。制定“伤害风险”方案以及研究人员、社区领导、卫生当局和卫生工作者之间的合作对于确保参与者在弱势人群中的研究安全至关重要。
A "risk of harm" protocol to identify youth in need of immediate emergency assistance in a study on mental health and HIV in Rwanda among 680 youth ages 10-17 is described. Cases are presented that describe the experience in using this protocol to ensure safety of participants, with ethical and logistical challenges considered. Among the population of the study, 3.2% were deemed "risk of harm." The most prevalent presenting problem was non-fatal suicidal behavior (91% of risk of harm cases), with 36% having a history of a reported previous attempt. Challenges included: acute food insecurity/significant poverty; lack of support/adequate supervision from family members; family violence; alcohol abuse; and HIV-related stigma. Development of a "risk of harm" protocol and collaboration between study staff, community leadership, health authorities, and health workers are critical to ensuring participants' safety in research among vulnerable populations.