What is genetic discrimination, and when and how can it be prevented?
What is genetic discrimination, and when and how can it be prevented?
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什么是基因歧视？何时以及如何预防？
作者：
M. Rothstein;M. Anderlik
关于禁止歧视立法的可取性和范围的公共政策辩论变得越来越不稳定。去年，一篇煽动性的评论文章敦促公民“鼓起勇气，对基因进行歧视”，这篇文章被广泛转载。另一位评论者认为，基因歧视“既合理又不可避免。“另一方面，一些著名的遗传科学家和立法者以及疾病支持团体继续将通过对受影响个人提供强有力保护的法律作为他们的首要任务之一。遗传学研究人员和临床医生需要认识到关于歧视的未阐明的假设，这些假设影响了辩论，并理解正义和公平的不同解释之间的潜在紧张关系。在这篇文章中，我们探讨了歧视一词的一些细微差别和一些分歧的来源，然后再询问何时以及如何防止基因歧视。
The public policy debate concerning the desirability and scope of legislation prohibiting discrimination has become increasingly volatile. Last year, a provocative opinion piece urging citizens to "gather courage to discriminate genetically" was widely syndicated. Another commentator suggested that genetic discrimination is "both rational and inevitable." On the other hand some prominent genetic scientists and legislators as well as disease support groups, continue to make passage of laws with strong protections for affected individuals one of their top priorities. Genetic researchers and clinicians need to recognize the unarticulated assumptions about discrimination that shape the debate and understand the underlying tensions between differing accounts of justice and fairness. In this article, we explore some of the nuances of the term discrimination and some of the sources of disagreement, before asking when and how genetic discrimination can be prevented.
基因检测、逆向选择和人寿保险的需求。
DOI：
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发表时间：
2000
期刊：
American journal of medical genetics.
影响因子：
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作者：
Zick,CD;Smith,KR;Mayer,RN;Botkin,JR
通讯作者：
Botkin,JR