Becoming men: Gender, disability, and transitioning to adulthood
Becoming men: Gender, disability, and transitioning to adulthood
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DOI：
10.1177/1363459313476967
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发表时间：
2014-01-01
期刊：
影响因子：
2.1
通讯作者：
Hamdani, Yani
中科院分区：
文献类型：
--
作者：
Gibson, Barbara E.;Mistry, Bhavnita;Hamdani, Yani
患有进展性疾病的儿童和青少年寿命更长，人们对设计帮助他们过渡到成年的方案越来越感兴趣。然而，迄今为止，几乎没有一项过渡研究关注残疾男孩成为男人的经历，也没有关键的概念性工作，将正常成年的概念问题化，或将过渡的复杂、多样和性别化的经历理论化。在这项加拿大研究中，我们调查了性别，残疾和成年初显期的交叉性与15名杜氏肌营养不良症的年轻男性。参与者创建了音频日记和照片，并在深入采访中进行了探讨。使用布迪厄的透镜和亚瑟弗兰克的叙事惯习的概念，我们研究了参与者如何重新/协商身份在日常实践中。我们的分析表明，残疾、男性气质和世代（生命阶段）身份认同通过无差异的叙述来实现，其中参与者努力建立典型男性的身份认同。在有限的学校和工作领域内，与会者远离残疾人的标签，讨论了他们在规范发展轨迹方面的成功和挑战。我们认为，对正常的追求在健康和社会项目中得到了再现和加强，并关闭了其他叙事和可能性。
Children and youth with progressive conditions are living longer, and there is increased interest in designing programs that will assist them with transitioning to adulthood. Almost none of the transitions research to date, however, has attended to the experiences of disabled boys in becoming men, nor has there been critical conceptual work problematizing notions of normal adulthood or theorizing the complex, diverse, and gendered experiences of transitioning. In this Canadian study, we investigated the intersectionality of gender, disability, and emerging adulthood with 15 young men with Duchenne muscular dystrophy. Participants created audio diaries and photographs that were explored in in-depth interviews. Using a Bourdieusian lens and Arthur Frank's notion of the narrative habitus, we examined how participants re/negotiated identities in everyday practices. Our analysis suggested that disability, masculinities, and generational (life stage) identities intersected through narratives of nondifference, wherein participants worked to establish identities as typical guys. Within limited fields of school and work, participants distanced themselves from the label of disabled and discussed their successes and challenges in terms of normative developmental trajectories. We suggest that the pursuit of normal is reproduced and reinforced in health and social programs and closes off other narratives and possibilities.