Measuring the burden of treatment for chronic disease: implications of a scoping review of the literature.
Measuring the burden of treatment for chronic disease: implications of a scoping review of the literature.
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DOI：
10.1186/s12874-017-0411-8
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发表时间：
2017-09-12
影响因子：
4
通讯作者：
McMillan SS
中科院分区：
文献类型：
--
作者：
Sav A;Salehi A;Mair FS;McMillan SS
虽然对治疗负担的研究越来越多，但目前衡量这一概念的证据尚不清楚。这一范围界定审查的目的是在慢性病的背景下提供当前知识状况的概述以及对未来研究的明确建议。全面检索了四个基于健康的数据库，Scopus，CINAHL，Medline和PsychInfo，以查找2000 - 2016年期间发表的同行评审文章。标题和摘要由两位作者独立阅读。提交人之间的所有分歧均由第三位提交人解决。使用标准化形式提取数据，并进行比较分析，以探索关键的治疗负担措施，并将其分为三组。数据库检索识别出1458篇潜在文献。在删除重复和标题不相关的文章后，仍有1102篇摘要。通过滚雪球搜索增加了另外22篇论文。最终，101篇论文被纳入审查。大量研究涉及治疗负担的定量测量和概念化（n = 64; 63.4%），并在北美进行（n = 49; 48.5%）。在如何操作和衡量慢性病患者所经历的治疗负担方面存在显著差异。尽管开展了大量工作，但要全面衡量慢性病的治疗负担，仍有许多工作要做。应考虑更加注重质量，更多地对文化和少数民族人口进行研究，更加强调纵向研究，并考虑"身份"对治疗负担的潜在影响。
Although there has been growing research on the burden of treatment, the current state of evidence on measuring this concept is unknown. This scoping review aimed to provide an overview of the current state of knowledge as well as clear recommendations for future research, within the context of chronic disease. Four health-based databases, Scopus, CINAHL, Medline, and PsychInfo, were comprehensively searched for peer-reviewed articles published between the periods of 2000–2016. Titles and abstracts were independently read by two authors. All discrepancies between the authors were resolved by a third author. Data was extracted using a standardized proforma and a comparison analysis was used in order to explore the key treatment burden measures and categorize them into three groups. Database searching identified 1458 potential papers. After removal of duplications, and irrelevant articles by title, 1102 abstracts remained. An additional 22 papers were added via snowball searching. In the end, 101 full papers were included in the review. A large number of the studies involved quantitative measures and conceptualizations of treatment burden (n = 64; 63.4%), and were conducted in North America (n = 49; 48.5%). There was significant variation in how the treatment burden experienced by those with chronic disease was operationalized and measured. Despite significant work, there is still much ground to cover to comprehensively measure treatment burden for chronic disease. Greater qualitative focus, more research with cultural and minority populations, a larger emphasis on longitudinal studies and the consideration of the potential effects of “identity” on treatment burden, should be considered.
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影响因子：
3.5
作者：
Brod, Meryl;Valensi, Paul;Christensen, Torsten L.
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作者：
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