Blowing in the Wind: Unanchored Patient Information Work during Cancer Care.
Blowing in the Wind: Unanchored Patient Information Work during Cancer Care.
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DOI：
10.1145/1753326.1753355
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发表时间：
2010-04
期刊：
影响因子：
--
通讯作者：
Pratt W
中科院分区：
文献类型：
--
作者：
Klasnja P;Hartzler AC;Unruh KT;Pratt W
病人做了大量的信息工作。帮助患者管理健康信息的技术，使他们能够在医疗保健中发挥积极作用，例如个人健康记录，为患者提供有效的支持，以专注和持续的个人健康任务。然而，很少有人关注患者在旅途中和远离个人健康信息收集时对信息管理支持的需求。通过一项定性的实地研究，我们调查了乳腺癌患者在这种“非锚定设置”的信息工作。我们报告了患者在癌症治疗过程中所做的非锚定信息工作的类型，这项工作具有挑战性的原因，以及患者克服这些挑战所使用的策略。我们对非固定患者信息工作的描述扩展了我们对患者信息实践的理解，并指出了支持关键但未满足需求的有价值的设计方向。
Patients do considerable information work. Technologies that help patients manage health information so they can play active roles in their health-care, such as personal health records, provide patients with effective support for focused and sustained personal health tasks. Yet, little attention has been paid to patients’ needs for information management support while on the go and away from their personal health information collections. Through a qualitative field study, we investigated the information work that breast cancer patients do in such ‘unanchored settings’. We report on the types of unanchored information work that patients do over the course of cancer treatment, reasons this work is challenging, and strategies used by patients to overcome those challenges. Our description of unanchored patient information work expands our understanding of patients’ information practices and points to valuable design directions for supporting critical but unmet needs.
DOI：
10.1197/jamia.m0978
发表时间：
2002-03-01
影响因子：
6.4
作者：
Kim, MI;Johnson, KB
通讯作者：
Johnson, KB
影响因子：
1.6
作者：
Consolvo, S;Roessler, P;Bly, S
通讯作者：
Bly, S
影响因子：
22.4
作者：
FLANAGAN, JC
通讯作者：
FLANAGAN, JC