Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention.
Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention.
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DOI：
10.1371/journal.pone.0241801
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发表时间：
2020
期刊：
影响因子：
3.7
通讯作者：
Ekman I
中科院分区：
文献类型：
--
作者：
Barenfeld E;Ali L;Wallström S;Fors A;Ekman I
其目的是探索以人为本的电子健康干预的经验，在诊断为慢性阻塞性肺疾病（COPD）或慢性心力衰竭（CHF）的患者。扎根理论被应用于收集和分析数据。该研究是一项研究项目的一部分，该项目使用数字平台和结构化电话支持评估以人为本的护理（PCC）对从瑞典9个初级保健单位招募的COPD或CHF患者的影响。干预组的12名患者是根据最初的抽样标准有目的地选择的。通过数字平台和电话支持系统提供干预6个月。干预依赖于以人为本的伦理，通过三个核心PCC组成部分：患者叙述，伙伴关系和共享文件。制定了一个核心类别：当没有前门钥匙时，通过侧门受到欢迎。核心类别反映了远程提供的PCC干预如何在需要专业联系以支持患者自我管理目标时提供相互和非正式会议的访问。根据病人的意愿，在电子保健方面，很少邀请家人和朋友作为护理伙伴。作为对诊断为COPD或CHF患者的初级保健环境中标准护理的补充，远程提供PCC干预是增加患者获得和参与预防性护理的可行方法。电子健康干预似乎促进了PCC，加强了患者在卫生服务系统中的地位，并支持他们的自我管理。
The aim was to explore the experiences of a person-centred e-health intervention, in patients diagnosed with chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF). Grounded theory was applied to gather and analyse data. The study is part of a research project evaluating the effects of person-centred care (PCC) using a digital platform and structured telephone support for people with COPD or CHF recruited from nine primary care units in Sweden. Twelve patients from the intervention group were purposefully selected in accordance with the initial sampling criteria. The intervention was delivered through a digital platform and telephone support system for 6 months. The intervention relied on person-centred ethics operationalised through three core PCC components: patient narratives, partnership and shared documentation. A core category was formulated: Being welcomed through the side door when lacking the front door keys. The core category reflects how a PCC intervention delivered remotely provides access to mutual and informal meetings at times when professional contacts were desired to support patient self-management goals. According to patients’ wishes, family and friends were seldom invited as care partners in the e-health context. A PCC intervention delivered remotely as a complement to standard care in a primary care setting for patients diagnosed with COPD or CHF is a viable approach to increase patients’ access and involvement in preventive care. The e-health intervention seemed to facilitate PCC, strengthen patients’ position in the health service system and support their self-management.
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DOI：
10.1186/1748-5908-4-50
发表时间：
2009-08-07
期刊：
Implementation science : IS
影响因子：
--
作者：
Damschroder LJ;Aron DC;Keith RE;Kirsh SR;Alexander JA;Lowery JC
通讯作者：
Lowery JC
影响因子：
2.8
作者：
Sanders C;Rogers A;Bowen R;Bower P;Hirani S;Cartwright M;Fitzpatrick R;Knapp M;Barlow J;Hendy J;Chrysanthaki T;Bardsley M;Newman SP
通讯作者：
Newman SP
影响因子：
3.7
作者：
Kenealy TW;Parsons MJ;Rouse AP;Doughty RN;Sheridan NF;Hindmarsh JK;Masson SC;Rea HH
通讯作者：
Rea HH
影响因子：
3.5
作者：
Kielmann, Tara;Huby, Guro;Pinnock, Hilary
通讯作者：
Pinnock, Hilary
影响因子：
3.7
作者：
Fors A;Blanck E;Ali L;Ekberg-Jansson A;Fu M;Lindström Kjellberg I;Mäkitalo Å;Swedberg K;Taft C;Ekman I
通讯作者：
Ekman I