The role of patients' illness representations in coping and functioning with Addison's disease
The role of patients' illness representations in coping and functioning with Addison's disease
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DOI：
10.1348/135910799168533
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发表时间：
1999-05-01
影响因子：
7.9
通讯作者：
Heijmans, M
中科院分区：
文献类型：
--
作者：
Heijmans, M
客观的。研究阿迪森氏病 (AD) 患者的疾病表征、应对行为和适应性结果之间的关系。设计。横截面。根据 Leventhal 的自我调节模型（Leventhal、Meyer 和 Nerenz，1980），假设聊天疾病表征与应对方式直接相关，并通过应对方式与适应性结果直接相关。方法。通过问卷调查和全面访谈，对 63 名被诊断为阿迪森氏病的患者进行了疾病陈述调查，包括对疾病的身份、病程、原因、治疗可能性和后果、他们使用的应对策略以及身体和心理健康状况的信念问题。结果。 AD 患者对疾病的主观体验差异很大。研究发现，那些认为自己的疾病是一种严重疾病、频繁且严重的症状和后果的患者、那些认为自己的疾病是慢性的患者以及那些认为自己的疾病无法控制的患者，与那些持相反看法的患者相比，更多地采取被动应对策略，并且在身体功能、社会功能、心理健康和总体活力方面报告的残疾程度更高。回归分析表明，与应对分数相比，疾病表征是适应性结果更好的预测因素。结论。疾病表征似乎在艾迪生病的功能中发挥着重要作用。讨论了这些发现对 AD 患者医疗保健相关干预措施设计的影响。
Objective. To examine the relationship between illness representations, coping behaviour and adaptive outcome in patients with Addison's disease (AD).Design. Cross-sectional. Following Leventhal's self-regulation model (Leventhal, Meyer & Nerenz, 1980), it was hypothesized chat illness representations are directly associated with coping and, via coping, with adaptive outcome.Method. The illness representations held by 63 patients with a diagnosis of Addison's disease were explored using a questionnaire and a comprehensive interview, including questions on beliefs about the identity, course, cause, treatment possibilities and consequences of their illness, the coping strategies they use, and their physical and psychological well-being.Results. AD patients differ highly in the subjective experience of their disease. Patients who view their illness as a serious condition with both frequent and serious symptoms and consequences, patients who believe their illness is chronic, and patients who consider their illness uncontrollable were found to engage more in passive coping strategies and to report higher levels of disability with regard to physical functioning, social functioning, mental health and general vitality than those who believed the opposite. Regression analyses indicated that illness representations were better predictors of adaptive outcome than were coping scores.Conclusion. Illness representations seem to play an important role in functioning in Addison's disease. The implications of these findings for the design of health care-related interventions for AD patients are discussed.