Research using emergency department-related data sets: current status and future directions.

Research using emergency department-related data sets: current status and future directions.
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DOI:
10.1111/j.1553-2712.2009.00554.x
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发表时间:
2009-11
期刊:
Academic emergency medicine : official journal of the Society for Academic Emergency Medicine
影响因子:
--
通讯作者:
McCaig LF
McCaig LF
中科院分区:
其他
文献类型:
--
作者:
Hirshon JM;Warner M;Irvin CB;Niska RW;Andersen DA;Smith GS;McCaig LF

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2009年学术急诊医学共识会议的重点是“公共卫生在艾德:监测,筛查和干预。”一次会议分组会议讨论了与健康有关的数据集的重要研究价值。本文代表了会议的程序,主要集中在急诊科(艾德)相关的数据集,并包括使用的数据集的基础上艾德访问的研究目的的例子。它讨论了可用的ED相关数据集的类型,强调了ED相关数据集的研究使用的障碍,并指出了这些数据集的局限性。该文件强调了未来的方向和挑战,使用这些重要的数据来源的研究,包括确定五个主要需求,以加强使用ED相关的数据集。这些是:1)初始和随访艾德访视的电子链接,以及有关艾德访视的信息与其他结果(包括护理费用)的链接,同时保持数据的去识别化; 2)以最小障碍及时访问数据; 3)完成临床相关和/或历史数据元素的数据收集,例如外部损伤原因代码; 4)易于获取数据,这些数据可在保持机密的同时,为政策和/或研究目的而在较小的管辖区(如州)进行分析; 5)健康调查数据与健康声明数据之间的联系。ED相关数据集包含直接从医疗机构,个人患者记录和多个其他来源收集的大量数据,这些数据对研究和改善个人和人群的健康具有重大的潜在影响。
The 2009 Academic Emergency Medicine consensus conference focused on “Public Health in the ED: Surveillance, Screening and Intervention.” One conference breakout session discussed the significant research value of health-related data sets. This article represents the proceedings from that session, primarily focusing on emergency department (ED)-related data sets and includes examples of the use of a data set based on ED visits for research purposes. It discusses types of ED-related data sets available, highlights barriers to research use of ED-related data sets, and notes limitations of these data sets. The paper highlights future directions and challenges to using these important sources of data for research, including identification of five main needs related to enhancing the use of ED-related data sets. These are 1) electronic linkage of initial and follow-up ED visits and linkage of information about ED visits to other outcomes, including costs of care, while maintaining deidentification of the data; 2) timely data access with minimal barriers; 3) complete data collection for clinically relevant and/or historical data elements, such as the external cause-of-injury code; 4) easy access to data that can be parsed into smaller jurisdictions (such as states) for policy and/or research purposes, while maintaining confidentiality; and 5) linkages between health survey data and health claims data. ED-related data sets contain much data collected directly from health care facilities, individual patient records, and multiple other sources that have significant potential impact for studying and improving the health of individuals and the population.
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