Models and frameworks of patient engagement in health services research: a scoping review protocol.
Models and frameworks of patient engagement in health services research: a scoping review protocol.
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DOI：
10.1186/s40900-018-0111-5
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发表时间：
2018
影响因子：
--
通讯作者：
Schultz ASH
中科院分区：
文献类型：
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作者：
Chudyk AM;Waldman C;Horrill T;Demczuk L;Shimmin C;Stoddard R;Hickes S;Schultz ASH
患者参与研究是一种新兴的方法，涉及研究人员和患者在项目的所有阶段进行积极和有意义的合作，包括规划，数据收集和分析以及分享结果。为了更好地理解患者参与的核心特征（元素），看看指导其行为的模型和框架是有用的。因此，这份手稿的目的是提出一个协议的范围审查的模型和框架的病人参与卫生服务研究。方法：我们的方案设计是基于一个既定的框架进行范围审查。我们将通过系统检索电子数据库、网站、纳入文章的参考文献列表以及与同事和专家的通信来确定相关模型和框架。我们将包括已发表和未发表的文章，这些文章提出了患者参与卫生服务研究的模型和框架，并排除了那些不是英文或无法作为全文提供的文章。两名评审员将独立评审已识别文章的摘要和全文，以纳入并提取相关数据;第三名评审员将解决差异。我们的主要目标是统计和描述患者参与的要素，这些要素在纳入的模型和框架中重叠（存在2个或更多）和分歧。讨论：我们希望这篇综述将提高人们对患者参与卫生服务研究的现有模式和框架的认识。此外，通过确定模型和框架之间的重叠和分歧的元素，这篇综述将有助于更清楚地了解患者参与研究的情况。背景：患者可以通过他们接受医疗服务的生活体验为医疗研究带来专家的声音。患者参与研究是一种新兴的方法，它挑战研究人员通过在整个研究过程中与患者进行有意义和积极的合作来认识和利用这种专业知识。为了更清楚地了解患者参与的核心要素，检查指导其行为的现有模型和框架是有用的。因此，本手稿的目的是提出一个协议的范围审查的模型和框架的病人参与卫生服务研究。方法：借鉴Arksey和O'Malley和Levac等人的方法。的范围审查框架，我们设计了我们的方案，以确定相关的a）通过系统检索7个电子数据库和雪球抽样发表的文章和B）通过系统检索数据库和网站和雪球抽样未发表的文章。我们将包括已发表和未发表的模型和框架的病人参与卫生服务研究，并排除那些不是英文或无法作为全文。两名评审员将独立筛选已识别文章的摘要和全文，以纳入并提取相关数据;第三名评审员将解决分歧。我们将对这些特征进行描述性分析（即，患者参与的基本要素以及与研究作者、出版物和模型/框架相关的要素），以及对模型或框架要素相关数据的叙述性分析。我们的主要目标是统计和描述患者参与的要素，这些要素在已识别的模型和框架中重叠（≥ 2）和分歧（<2）。讨论内容：通过识别现有模型和框架之间的重叠和分歧的元素，本次审查将提供一个起点，我们的集体理解什么样的病人参与卫生服务研究和/或可能的批判性反思。最终，我们希望本次审查的结果提高了对现有模型和框架的认识，并通过确定塑造这种方法的关键要素，揭示了进行患者参与研究的一些复杂性。
Patient engagement in research is an emerging approach that involves active and meaningful collaboration between researchers and patients throughout all phases of a project, including planning, data collection and analysis, and sharing of findings. To better understand the core features (elements) that underlie patient engagement, it is useful to have a look at models and frameworks that guide its conduct. Therefore, this manuscript aims to present a protocol for a scoping review of models and frameworks of patient engagement in health services research. Methods: Our protocol design is based on an established framework for conducting scoping reviews. We will identify relevant models and frameworks through systematic searches of electronic databases, websites, reference lists of included articles, and correspondence with colleagues and experts. We will include published and unpublished articles that present models and frameworks of patient engagement in health services research and exclude those not in English or unavailable as full texts. Two reviewers will independently review abstracts and full texts of identified articles for inclusion and extract relevant data; a third reviewer will resolve discrepancies. Our primary objective is to count and describe elements of patient engagement that overlap (present in 2 or more) and diverge among included models and frameworks. Discussion: We hope this review will raise awareness of existing models and frameworks of patient engagement in health services research. Further, by identifying elements that overlap and diverge between models and frameworks, this review will contribute to a clearer understanding of what patient engagement in research is and/or could be. Background: Patients can bring an expert voice to healthcare research through their lived experience of receiving healthcare services. Patient engagement in research is an emerging approach that challenges researchers to acknowledge and utilize this expertise through meaningful and active collaboration with patients throughout the research process. In order to facilitate a clearer understanding of the core elements that underlie patient engagement, it is useful to examine existing models and frameworks that guide its conduct. Therefore, the aim of this manuscript is to present a protocol for a scoping review of models and frameworks of patient engagement in health services research. Methods: Drawing on Arksey and O’Malley’s and Levac et al.’s framework for scoping reviews, we designed our protocol to identify relevant a) published articles through systematic searches of 7 electronic databases and snowball sampling and b) unpublished articles through systematic searches of databases and websites and snowball sampling. We will include published and unpublished models and frameworks of patient engagement in health services research and exclude those not in English or unavailable as full texts. Two reviewers will independently screen the abstracts and full texts of identified articles for inclusion and extract relevant data; a third reviewer will resolve disagreements. We will conduct a descriptive analysis of the characteristics (i.e., elements underlying patient engagement and those related to the study authors, publication, and model/framework) of included articles and a narrative analysis of the data concerning elements of the model or framework. Our primary objective is to count and describe elements of patient engagement that overlap (present in ≥ 2) and diverge (present in < 2) among identified models and frameworks. Discussion: Through identification of elements that overlap and diverge between existing models and frameworks, this review will provide a starting point for the critical reflection on our collective understanding of what patient engagement in health services research is and/or could be. Ultimately, we hope that the findings of this review raise awareness of existing models and frameworks and shed light on some of the complexity of conducting patient engaged research through identification of key elements that shape this approach.