Ethical considerations and potential threats to validity for three methods commonly used to collect geographic information in studies among people who use drugs
Ethical considerations and potential threats to validity for three methods commonly used to collect geographic information in studies among people who use drugs
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DOI：
10.1016/j.addbeh.2016.05.014
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发表时间：
2016-10-01
影响因子：
4.4
通讯作者：
Fish, Sue
中科院分区：
文献类型：
--
作者：
Rudolph, Abby E.;Bazzi, Angela Robertson;Fish, Sue
背景资料：地理数据分析可用于确定“热点”和“卫生服务沙漠”，检查服务的接近程度与其使用之间的关联，并将背景因素与个人层面的数据联系起来，以更好地了解环境因素如何影响行为。收集这些信息的方法的技术进步可以提高与背景相关的信息的准确性;然而，它们已经超过了道德标准和指南的发展，特别是对于涉及从事非法/污名化行为的人群的研究。主题分析确定了使用不同方法收集地理数据的伦理考虑因素以及这些问题可能影响研究依从性和数据有效性的程度。（6名通过传单招募，9名通过同行推荐招募）报告最近的药物使用情况，探讨了收集地理信息的三种方法的舒适性和道德性：（1）收集自我报告的地址/交叉街道的调查，（2）使用基于网络的地图来查找/确认位置的调查，以及（3）收集时空参考行为数据的地理瞬时评估（GMA）。地址/十字路口和网络地图）一般是可以接受的;但是，与会者对非法/污名化行为的确切地址提出了保密问题。对全球海洋环境状况评估的具体关切包括携带/保护电话和对调查提示作出反应的负担、保密性、对被跟踪感到不适以及不遵守研究程序。总体而言，许多人认为，保密问题可能会影响收集的敏感行为和study compliance.Conclusions的位置信息的准确性：参与者提出的关注可能会导致差异的研究参与和/或研究依从性和可疑的准确性/有效性的敏感行为的位置数据。(C)2016爱思唯尔有限公司版权所有
Background: Analyses with geographic data can be used to identify "hot spots" and "health service deserts", examine associations between proximity to services and their use, and link contextual factors with individual-level data to better understand how environmental factors influence behaviors. Technological advancements in methods for collecting this information can improve the accuracy of contextually-relevant information; however, they have outpaced the development of ethical standards and guidance, particularly for research involving populations engaging in illicit/stigmatized behaviors. Thematic analysis identified ethical considerations for collecting geographic data using different methods and the extent to which these concerns could influence study compliance and data validity.Methods: In-depth interviews with 15 Baltimore residents (6 recruited via flyers and 9 via peer-referral) reporting recent drug use explored comfort with and ethics of three methods for collecting geographic information: (1) surveys collecting self-reported addresses/cross-streets, (2) surveys using web-based maps to find/confirm locations, and (3) geographical momentary assessments (GMA), which collect spatiotemporally referenced behavioral data.Results: Survey methods for collecting geographic data (i.e., addresses/cross-streets and web-based maps) were generally acceptable; however, participants raised confidentiality concerns regarding exact addresses for illicit/stigmatized behaviors. Concerns specific to GMA included burden of carrying/safeguarding phones and responding to survey prompts, confidentiality, discomfort with being tracked, and noncompliance with study procedures. Overall, many felt that confidentiality concerns could influence the accuracy of location information collected for sensitive behaviors and study compliance.Conclusions: Concerns raised by participants could result in differential study participation and/or study compliance and questionable accuracy/validity of location data for sensitive behaviors. (C) 2016 Elsevier Ltd. All rights reserved.