Validation of the care notebook for measuring physical, mental and life well-being of patients with cancer

Validation of the care notebook for measuring physical, mental and life well-being of patients with cancer
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DOI:
10.1007/s11136-004-2958-1
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发表时间:
2005-05-01
影响因子:
3.5
通讯作者:
Kudoh, S
Kudoh, S
中科院分区:
医学2区
文献类型:
--
作者:
Kobayashi, K;Green, J;Kudoh, S

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为了在临床肿瘤学的日常实践中测量患者的生活质量,我们开发并测试了护理笔记本。该工具有24个问题,用单个单词或简短的短语表示,以使患者更容易接受。护理笔记本、EORTC QLQ-C30和Facit-Sp-12被用于249名门诊癌症患者。结构效度通过聚类分析和多性状尺度分析进行检验。结果表明,三个量表(身体幸福感、心理幸福感和生活幸福感)可以解释分数差异的55个。生活幸福感量表可分为日常功能、社会功能和主观生活质量三个子量表。多因素量表分析证实了这些量表和分量表的收敛和区分效度。内部一致性和重测信度较好。护理笔记本得分的差异也与绩效状态评级的差异(已知组的有效性)一致,并且护理笔记本得分与EORTC QLQ-C30和FACT-Sp-12得分(同时效度)相关。护理笔记本允许临床肿瘤学家轻松收集有效和可靠的身体、精神和生活健康的生活质量信息,重复,并最大限度地减轻患者的负担。
To measure patients QOL in the daily practice of clinical oncology, we developed and tested the Care Notebook. This instrument has 24 questions expressed in single words or short phrases to make it more acceptable to patients. The Care Notebook, EORTC QLQ-C30 and FACIT-Sp-12 were administered to 249 outpatients with cancer. Construct validity was investigated by cluster analysis and multitrait scaling analysis. The results showed that three scales (physical well-being, mental well-being, and life well-being) could explain 55 of the variance in scores. The life well-being scale could be divided into subscales of Daily Functioning, Social Functioning, and Subjective QOL. Multitrait scaling analysis confirmed convergent and discriminant validity of these scales and subscales. Internal consistency and test-retest reliability were favorable. Differences in Care Notebook scores were also consistent with differences in performance status rating (known-groups validity), and Care Notebook scores correlated with EORTC QLQ-C30 and FACT-Sp-12 scores (concurrent validity). The Care Notebook allows clinical oncologists to easily collect valid and reliable QOL information of physical, mental, and life well-being repeatedly and with minimal burden on patients.