People with dementia living alone: what are their needs and what kind of support are they receiving?
People with dementia living alone: what are their needs and what kind of support are they receiving?
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DOI：
10.1017/s104161021000013x
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发表时间：
2010-06-01
影响因子：
7
通讯作者：
Orrell, Martin
中科院分区：
文献类型：
--
作者：
Miranda-Castillo, Claudia;Woods, Bob;Orrell, Martin
背景：在英国，约有 141,460 名痴呆症患者 (PWD) 独居。他们面临社会孤立以及社会和医疗监督不足的风险。本研究的目的是确定独居残疾人的需求，并比较独居残疾人与与他人共同生活的残疾人的需求。据预测，独居的残疾人比与他人一起生活的残疾人有更多未满足的需求。方法：对 152 名残疾人进行了访谈，了解他们的认知状况和生活质量 (QoL)；和 128 名非正式护理人员接受了采访，了解残疾人的生活质量、社交网络、行为和心理症状 (BPSD)、功能状态和所使用的服务。对于 24 岁的残疾人，没有护理人员可用。护理人员还接受了采访，了解他们自己的抑郁、焦虑、负担和满意度症状。研究人员对残疾人的需求进行了评估。三分之一的残疾人 (50 人) 独居。结果：独居的残疾人比与他人同住的残疾人 (M = 2.0, s.d. 2.0) 有更多未满足的需求 (M = 3.9, s.d. 3.1) (U = 1578, p < 0.01)，特别是在照顾家庭方面 (chi(2) = 17.23, p < 0.001)，食物（chi(2) = 13.91，p < 0.002）、自我护理（chi(2) = 10.23，p < 0.002）和意外自残（chi(2) = 16.51，p < 0.001）。最常见的未满足需求是白天活动（27, 54.0%）、陪伴（26, 52.0%）、心理困扰（22, 44.0%）、视力/听力（16, 32.0%）和意外自伤（16, 32.0%）。结论：独居残疾人是弱势群体，其社会、环境、心理和医疗需求未得到满足的风险较高。这项研究说明需要识别这些人，并在社会服务机构之间做出规定，定期监测他们的福祉，并在确定需求时提供更高水平的支持。
Background: In the U.K. about 141,460 people with dementia (PWD) live alone. They are at risk of social isolation and inadequate social and medical supervision. The aims of this study were to identify the needs of PWD living alone and to compare the needs of PWD living alone versus those living with others. It was predicted that PWD living alone would have significantly more unmet needs than those living with others.Methods: 152 PWD were interviewed about their cognitive status and quality of life (QoL); and 128 informal carers were interviewed about the PWD's QoL, social networks, behavioral and psychological symptoms (BPSD), functional status, and services used. For 24 PWD no carer was available. Carers were also interviewed about their own symptoms of depression, anxiety, burden, and satisfaction. Researchers rated PWD's needs. One-third of the PWD (50) were living alone.Results: PWD living alone had significantly more unmet needs (M = 3.9, s.d. 3.1) than those living with others (M = 2.0, s.d. 2.0) (U = 1578, p < 0.01) particularly in the areas of looking after home (chi(2) = 17.23, p < 0.001), food (chi(2) = 13.91, p < 0.002), self-care (chi(2) = 10.23, p < 0.002) and accidental self-harm (chi(2) = 16.51, p < 0.001). The most frequent unmet needs were daytime activities (27, 54.0%), company (26, 52.0%), psychological distress (22, 44.0%), eyesight/hearing (16, 32.0%), and accidental self-harm (16, 32.0%).Conclusion: PWD living alone are a vulnerable group who are at increased risk for unmet social, environmental, psychological and medical needs. This study illustrates the need to identify these individuals and to make provisions among social service agencies to monitor their well-being regularly and provide a higher level of support when needs are identified.