Impact of COVID-19 related social support service closures on people with dementia and unpaid carers: a qualitative study
Impact of COVID-19 related social support service closures on people with dementia and unpaid carers: a qualitative study
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DOI：
10.1080/13607863.2020.1822292
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发表时间：
2020-09-18
影响因子：
3.4
通讯作者：
Gabbay, Mark
中科院分区：
文献类型：
--
作者：
Giebel, Clarissa;Cannon, Jacqueline;Gabbay, Mark
目的获得社会护理和社会支持服务是支持痴呆症患者(PLWD)和无偿照顾者福祉的关键。新冠肺炎导致这些服务突然关闭或彻底修改，并导致长期自我孤立。本研究旨在探讨新冠肺炎相关社会照顾及支援服务变更与关闭对可持续发展妇女及无偿照顾者生活的影响。方法于2020年4月通过电话访谈PLWD和无偿照顾者。使用主题分析对成绩单进行分析。此外，还收集了新冠肺炎爆发前后的人口学特征，包括家庭多重剥夺指数和每周使用社会支持服务的小时数。使用配对样本t检验比较疫情爆发前后每周社会支持服务使用的平均小时数。结果50名无偿照顾者(n=42)和PLWD(n=8)接受了半结构式访谈。自疫情爆发以来，社会支持服务的使用量显著减少。专题分析确定了三个主要主题：(1)失去控制；(2)不确定性；(3)适应和必须适应新常态。照顾者和妇女福利会因突然取消社会支援服务而受到很大影响，并关注服务何时会重新开放。照顾者担心他们照顾的人是否还能重新加入社会支持服务。结论在大流行期间，艾滋病患者和照顾者需要接受具体的实际和心理支持，以支持他们的福祉，而他们的福祉受到公共卫生限制的严重影响。
Objectives Accessing social care and social support services is key to support the well-being of people living with dementia (PLWD) and unpaid carers. COVID-19 has caused sudden closures or radical modifications of these services, and is resulting in prolonged self-isolation. The aim of this study was to explore the effects of COVID-19 related social care and support service changes and closures on the lives of PLWD and unpaid carers. Method PLWD and unpaid carers were interviewed via telephone in April 2020. Transcripts were analysed using thematic analysis. Demographic characteristics including household Index of Multiple Deprivation score and weekly hours of social support service usage before and since the COVID-19 outbreak were also collected. Paired samples t-tests was used to compare the mean of weekly hours of social support service usage before and since the outbreak. Results 50 semi-structured interviews were conducted with unpaid carers (n = 42) and PLWD (n = 8). There was a significant reduction in social support service usage since the outbreak. Thematic analysis identified three overarching themes: (1) Loss of control; (2) Uncertainty; (3) Adapting and having to adapt to the new normal. Carers and PLWD were greatly affected by the sudden removal of social support services, and concerned about when services would re-open. Carers were worried about whether the person they cared for would still be able to re-join social support services. Conclusions PLWD and carers need to receive specific practical and psychological support during the pandemic to support their well-being, which is severely affected by public health restrictions.