Research in Danish cancer rehabilitation: Social characteristics and late effects of cancer among participants in the FOCARE research project
Research in Danish cancer rehabilitation: Social characteristics and late effects of cancer among participants in the FOCARE research project
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DOI：
10.1080/02841860701418846
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发表时间：
2008-01-01
期刊：
影响因子：
3.1
通讯作者：
Johansen, Christoffer
中科院分区：
文献类型：
--
作者：
Hoybye, Mette Terp;Dalton, Susanne Oksbjerg;Johansen, Christoffer
在世界范围内，由于癌症治疗方法的改进，癌症幸存者的人数正在增加，从而更加需要解决癌症的身心后遗症。本文介绍了丹麦的癌症心理社会干预，并提出了癌症幸存者的基线特征，癌症部位，社会人口变量，社会网络，生活方式，自测健康和癌症相关的晚期效应的患病率。这项研究是FOCARE研究项目的一部分，在该项目中，对康复方案的长期效果进行了系统评估。该研究基于2174名癌症幸存者填写的自填基线问卷的数据，这些幸存者登记参加了为期1周的公费康复静修，并应邀参加了2002年11月25日至2005年12月31日期间的FOCARE研究。基线缓解率为86%（n = 1876）。大多数参与者是患有乳腺癌的年轻女性。他们一般都受过良好的教育和工作。癌症幸存者报告说，他们拥有广泛的社交网络，并积极参加体育活动。在选定的部位患有癌症的妇女报告了几种与癌症有关的症状，其中疲劳是最普遍的。超过一半的人报告了良好到优秀的自我评估健康状况，而40%的人报告了一般到差的健康状况，其中大多数人是肺癌（56%）和血液系统癌症（48%）的幸存者。结果表明，丹麦癌症幸存者的身体健康状况大大降低，可能是治疗的后期身体影响。癌症幸存者报告的问题表明，癌症康复应包括癌症后生活的这些方面，并考虑癌症幸存者在癌症部位、性别、年龄、家庭、工作状况和社会地位方面的差异。这些挑战可以在多层面康复方案中得到最佳解决。
Worldwide, the number of cancer survivors is increasing, owing to improvements in cancer therapy, resulting in an increased need to address the physical and mental sequelae of cancer. This paper introduces a Danish psychosocial cancer intervention and presents the baseline characteristics of the cancer survivors with respect to cancer site, sociodemographic variables, social network, lifestyle, self-rated health and the prevalence of cancer-related late effects. The study is part of the FOCARE research project, in which the long-term effects of the rehabilitation programme are evaluated systematically. The study is based on data from a self-administered baseline questionnaire filled in by 2 174 cancer survivors who registered for a 1-week, publicly paid rehabilitation retreat and were invited to participate in the FOCARE study in the period 25 November 2002 to 31 December 2005. The response rate at baseline was 86% (n = 1876). Most participants were younger women with breast cancer. They were generally well educated and working. The cancer survivors reported having comprehensive social networks and being physically active. Several cancer-related symptoms were reported by women with cancers at selected sites, of which fatigue was the most prevalent. More than half reported good-to-excellent self-rated health, while fair-to-poor health was reported by 40%, most of whom were survivors of lung (56%) and haematological (48%) cancers. The results indicate that Danish cancer survivors experience considerably reduced physical health, possibly as late physical effects of treatment. The problems reported by the cancer survivors suggest that cancer rehabilitation should include these aspects of living after cancer and take account of differences among cancer survivors with regard to cancer site, sex, age, family, working status and social position. These challenges might be addressed optimally in multi-dimensional rehabilitation programmes.