Starting HIV-positive Babies on Antiretroviral Treatment: Perspectives of Mothers in Soweto, South Africa
Starting HIV-positive Babies on Antiretroviral Treatment: Perspectives of Mothers in Soweto, South Africa
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DOI：
10.1016/j.pedhc.2009.07.006
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发表时间：
2010-05-01
影响因子：
2.8
通讯作者：
Violari, Avy
中科院分区：
文献类型：
--
作者：
Lazarus, Ray;Struthers, Helen;Violari, Avy
简介：对感染人类免疫缺陷病毒（HIV）的婴儿及时有效地开始抗逆转录病毒治疗至关重要。母亲对其艾滋病毒阳性婴儿的医疗保健和治疗的看法可能会影响她们参与医疗保健的方式。方法：使用定性方法对艾滋病毒阳性母亲的方便样本进行访谈。主题分析用于确定对参与者重要的主题以及与卫生服务提供相关的主题。 结果：这些母亲似乎对婴儿的护理和治疗了解得比较充分且积极，但她们的理解和实践受到自己的经验、观察和恐惧以及其他人的观点的影响。婴儿接受抗逆转录病毒治疗提高了她们自己的医疗保健动机，但每天都会提醒婴儿的状况、仍然可能的死亡以及她们自己死亡的前景，这构成了沉重的情感负担。讨论：该研究强调了母亲的理解、态度和担忧的复杂性、模糊性和环环相扣的性质。这与医疗保健提供者通常相当一维的沟通形成鲜明对比，并强调需要与母亲进行更全面的接触。 J 儿科保健。 (2010) 24, 176-183。
Introduction: Timely and effective initiation of antiretroviral treatment for babies infected with the human immunodeficiency virus (HIV) is critical. Mothers' perspectives on the health care and treatment of their HIV-positive babies could affect how they engage with health care.Method: A convenience sample of HIV-positive mothers was interviewed using qualitative methods. Thematic analysis was used to identify themes significant for participants as well as those relevant to health service provision.Results: These mothers seemed relatively well-informed and positive regarding their baby's care and treatment, but their understanding and practice was influenced by their own experience, observations, and fears, as well as the views of others. Having a baby on antiretroviral treatment improved their own health care motivation, but the daily reminder that it provided of the baby's status and still possible death and the prospect of their own death constituted a heavy emotional burden.Discussion: The study highlights the complexity, ambiguity, and interlocking nature of the mothers' understandings, attitudes, and concerns. This contrasts with the often fairly one-dimensional nature of communication by health care providers and highlights the need to engage more comprehensively with mothers. J Pediatr Health Care. (2010) 24, 176-183.