Health-related quality of life and its determinants among adults with autism
Health-related quality of life and its determinants among adults with autism
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DOI：
10.1016/j.rasd.2013.11.003
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发表时间：
2014-03-01
影响因子：
2.5
通讯作者：
Mahabaleshwarkar, Rohan
中科院分区：
文献类型：
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作者：
Khanna, Rahul;Jariwala-Parikh, Krutika;Mahabaleshwarkar, Rohan
本研究的目的是确定患有自闭症的成年人的健康相关生活质量 (HRQOL)，并将其与美国 (US) 一般成年人的 HRQOL 进行比较。还确定了预测成人自闭症患者 HRQOL 的因素。进行了一项横断面在线调查来收集研究信息。从在互动自闭症网络 (IAN) 注册的自闭症成年人中，确定了那些年龄在 18 岁及以上且有自我报告能力的人，并邀请他们参与研究。最终样本包括 291 名患有自闭症的成年人。单向 t 检验显示，患有自闭症的成年人的身心 HRQOL 显着低于美国同龄人。使用线性回归分析，包括社会支持和应对以及其他社会人口统计和医学特征在内的可修改因素被确定为身体和心理 HRQOL 的重要预测因素。来自朋友和家人的社会支持的充分性与较高的 HRQOL 相关，而更多地使用适应不良的应对方式则与较低的 HRQOL 相关。临床医生和其他健康干预专家应考虑评估成人自闭症患者的这些因素，并为这些成人提供必要的能力，以提高他们的 HRQOL。 (C) 2013 Elsevier Ltd. 保留所有权利。
The purpose of this study was to determine health-related quality of life (HRQOL) among adults with autism, and compare it to the HRQOL of the general adult population in the United States (US). Factors predicting HRQOL of adults with autism were also identified. A cross-sectional online survey was conducted to gather study information. From adults with autism registered with the Interactive Autism Network (IAN), those aged 18 years and above and having the capacity to self-report were identified and approached for study participation. The final sample included 291 adults with autism. One-way t-test revealed adults with autism to have significantly lower physical and mental HRQOL than their counterparts in the US population. Using linear regression analysis, modifiable factors including social support and coping along with other socio-demographic and medial characteristics were identified as significant predictors of physical and mental HRQOL. Greater perceived adequacy of social support from friends and family was associated with better HRQOL, while greater use of maladaptive coping was associated with lower HRQOL. Clinicians and other health interventionist should consider assessing these factors among adults with autism, and provide necessary capabilities to these adults with the aim of improving their HRQOL. (C) 2013 Elsevier Ltd. All rights reserved.