Recovery and self-management support following primary cancer treatment

Recovery and self-management support following primary cancer treatment
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DOI:
10.1038/bjc.2011.419
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发表时间:
2011-11-03
影响因子:
8.8
通讯作者:
Fenlon, D.
Fenlon, D.
中科院分区:
医学1区
文献类型:
--
作者:
Foster, C.;Fenlon, D.

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背景:在英国,约有200万人患有癌症或已从癌症中康复。然而,初次治疗后的经历和需求相对被忽视。治疗后,幸存者可能会感到特别脆弱,并面临身份认同方面的威胁。我们提出一个概念框架,为自我管理支持的各个领域提供信息,以促进癌症初次治疗后的健康和幸福恢复。 方法:为解释该框架,我们借鉴了两项研究的数据:关于癌症患者研究重点的全英咨询以及癌症初次治疗后一年内幸存者的自我管理情况。 结果:治疗后自信心可能较低。康复包括重建失去的信心。对癌症患者日常生活影响进行管理的支持是一个重点。自我管理支持包括医疗专业人员、同龄人、雇主、家人、朋友以及网络资源。然而,支持并非总是可获取的,获取支持的信心也可能较低。 结论:在初次治疗后,如果信心不足或缺乏支持,癌症幸存者可能难以进行自我管理。信心不足可能是获取支持的一个重大障碍。在医疗保健和癌症随访不断变化的背景下,支持自信心的恢复是康复的一个重要方面,与身体和心理社会问题同等重要。《英国癌症杂志》(2011年)105卷,S21 - S28页;doi:10.1038/bjc.2011.419 www.bjcancer.com © 2011英国癌症研究中心
BACKGROUND: Around 2 million people are living with or beyond cancer in the UK. However, experiences and needs following primary treatment are relatively neglected. Following treatment, survivors may feel particularly vulnerable and face threats to their identity. We present a conceptual framework to inform areas of self-management support to facilitate recovery of health and wellbeing following primary cancer treatment.METHODS: To explain the framework, we draw on data from two studies: UK-wide consultation about cancer patients' research priorities and survivors' self-management in the year following primary cancer treatment.RESULTS: Self-confidence may be low following treatment. Recovery includes rebuilding lost confidence. Support to manage the impact of cancer on everyday life was a priority. Self-management support included health professionals, peers, employers, family, friends and online resources. However, support was not always available and confidence to access support could be low.CONCLUSION: Cancer survivors may struggle to self-manage following primary treatment where confidence is low or support is lacking. Low confidence may be a significant barrier to accessing support. Supporting recovery of self-confidence is an important aspect of recovery alongside physical and psychosocial problems in the context of changing health care and cancer follow-up. British Journal of Cancer (2011) 105, S21 - S28; doi: 10.1038/bjc.2011.419 www.bjcancer.com (C) 2011 Cancer Research UK