Initial perspectives from Midwestern neurologists: Epilepsy patients' barriers and motivators for seeking treatment

Initial perspectives from Midwestern neurologists: Epilepsy patients' barriers and motivators for seeking treatment
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DOI:
10.1111/j.1528-1167.2006.01137.x
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发表时间:
2007-10-01
期刊:
影响因子:
5.6
通讯作者:
Molgaard, Craig A.
Molgaard, Craig A.
中科院分区:
医学1区
文献类型:
--
作者:
Hawley, Suzanne R.;Paschal, Angelia M.;Molgaard, Craig A.

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目的:癫痫是一种慢性神经系统疾病,影响着美国 270 万人,但人们对它仍知之甚少。护理人员可能无法认识到患者对癫痫信息的需求,从而造成治疗障碍,例如污名化和患者与护理人员沟通不畅。方法:当前的研究对 33 名中西部神经科医生进行了一项针对癫痫相关态度和看法的试点调查。该调查包括有关治疗的障碍和动机的问题、对社区和患者群体对癫痫的误解的思考,以及消除误解的潜在干预措施。结果:受访者认为患者和公众的错误信息和知识缺乏可能会导致充分治疗患者的障碍。受访者提出了有效消除误解的潜在方法。讨论:这项关于神经科医生对癫痫障碍和需求的看法的研究为制定干预措施以解决患者和公众的误解和障碍提供了重要的视角。
Purpose: Epilepsy is a chronic neurological illness that affects 2.7 million people in the United States, but remains poorly understood. Care providers may not recognize their patients' need for epilepsy information, contributing to treatment barriers, such as stigmatization and poor patient-provider communication.Methods: The current study piloted a survey of epilepsy-related attitudes and perceptions of 33 Midwestern neurologists. The survey included questions about perceived barriers to and motivators for treatment, thoughts on misperceptions of epilepsy in the community and in the patient population, and potential interventions to address misperceptions.Results: Respondents perceived misinformation and lack of knowledge in patients and the general public that could be contributing to the barriers that exist to treat patients adequately. Respondents suggested potential methods for addressing misperceptions effectively.Discussion: This study of neurologists' perceptions about epilepsy barriers and needs provides an important perspective for the development of interventions to address misperceptions and barriers among patients and the public.