Challenges Faced by Latino Caregivers in Transportation of Children with Medical Complexity.
Challenges Faced by Latino Caregivers in Transportation of Children with Medical Complexity.
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DOI：
10.18043/ncm.79.6.358
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发表时间：
2018-11-01
影响因子：
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通讯作者：
Beveridge, Mark S Jr
中科院分区：
文献类型：
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作者：
Nageswaran, Savithri;Rosado, Aura I;Beveridge, Mark S Jr
背景运输挑战影响获得医疗保健。我们的目标是描述拉丁裔儿童所面临的医疗复杂性的运输挑战，并确定可以解决这些挑战的策略。70名拉丁裔儿童的医疗复杂性谁参加了一个复杂的护理计划的三级保健儿童医院进行了为期18个月的中位数。定性数据是从护理协调员的遭遇日志和报告的经验中获得的每个孩子的护理协调说明。使用主题内容分析和迭代过程中，我们确定了经常性的主题相关的运输challenges.RESULTS照顾者的拉丁裔儿童与医疗复杂性面临着许多挑战，运送他们的孩子到医疗预约。这些包括缺乏车辆，无法驾驶，由于移民身份而缺乏驾驶执照，以及缺乏维护车辆的资源。因此，具有医疗复杂性的拉丁裔儿童通常需要非紧急医疗运输，但护理人员发现这些系统难以使用，部分原因是语言困难。因此，他们依靠护理协调员获得非紧急医疗运输。交通问题可能导致孩子错过医疗预约，照顾者失去工作。我们确定了相互关联的因素，有助于运输问题的拉丁美洲儿童与医疗的复杂性和潜在的战略，以解决themes.LIMITATIONS运输的挑战的程度无法辨别，因为这是一个定性study.CONCLUSIONS运输是困难的拉丁美洲儿童与医疗的复杂性，谁依靠非紧急医疗运输获得医疗服务。护理协调员在解决医疗复杂性拉丁美洲儿童及其照顾者的交通问题方面发挥着重要作用。
BACKGROUND Transportation challenges affect access to health care. Our objective was to describe transportation challenges faced by Latino children with medical complexity and identify strategies that could address these challenges.METHODS This is a qualitative study. Seventy Latino children with medical complexity who were enrolled in a complex care program of a tertiary care children's hospital were followed for a median duration of 18 months. Qualitative data were care coordination notes for each child obtained from care coordinators' encounter logs and reported experiences. Using thematic content analysis and an iterative process, we identified recurrent themes related to transportation challenges.RESULTS Caregivers of Latino children with medical complexity face many challenges transporting their children to medical appointments. These include lack of vehicle, inability to drive, lack of driver's license due to immigration status, and lack of resources to maintain a vehicle. As a result, Latino children with medical complexity often need non-emergency medical transportation, but caregivers find these systems difficult to use, in part because of language difficulties. Thus, they rely on care coordinators to access non-emergency medical transportation. Transportation problems can lead to missed medical appointments for the child and lost work for the caregiver. We identified interrelated factors that contributed to transportation issues for Latino children with medical complexity and potential strategies to address them.LIMITATIONS The extent of transportation challenges cannot be discerned because this is a qualitative study.CONCLUSIONS Transportation is difficult for Latino children with medical complexity, who rely on non-emergency medical transportation to access medical services. Care coordinators play a major role in addressing transportation problems for Latino children with medical complexity and their caregivers.