The impact of menstrual disorders on quality of life in women with inherited bleeding disorders
The impact of menstrual disorders on quality of life in women with inherited bleeding disorders
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DOI：
10.1111/j.1365-2516.2010.02269.x
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发表时间：
2010-09-01
期刊：
影响因子：
3.9
通讯作者：
von Mackensen, S.
中科院分区：
文献类型：
--
作者：
Kadir, R. A.;Edlund, M.;von Mackensen, S.
月经过多，大量月经出血，是一种常见的疾病，对许多妇女的生活产生重大影响。月经过多的客观测量往往是不切实际的，因此诊断和治疗通常是基于妇女的直接感知。月经问题可能在出血性疾病的女性中更严重，因为她们更有可能有沉重和痛苦的月经期和排卵出血和疼痛。这些可能对妇女的生活质量产生重大影响，特别是那些月经过多的妇女。这些问题也可能导致工作和学校的限制，并阻碍教育和学术成就。只有少数研究描述了有潜在止血缺陷的女性的生活质量（QOL）如何变化;较差的QOL与更频繁的出血症状相关。出血性疾病的早期识别、准确诊断和适当管理不仅可以提高受影响妇女的护理质量，还可以提高她们的生活质量。提高对月经问题，特别是月经过多的高发病率的认识，对于早期诊断和毫不拖延地提供适当治疗至关重要。准确了解月经过多对健康相关生活质量（HRQOL）的影响及其充分评估有助于个体化治疗和评估HRQOL的变化幅度。一种理想的情况是同时使用通用和特定疾病的衡量标准，以便能够在一般和特定疾病两个层面上进行比较。
Menorrhagia, heavy menstrual bleeding, is a common condition that has a substantial impact on the lives of many women. The objective measurement of menorrhagia is often impractical; therefore diagnosis and treatment are usually based on the direct perception of the woman. Menstrual problems are likely to be worse in women with bleeding disorders, as they are more likely to have heavy and painful menstrual periods and ovulation bleeding and pain. These can have a major impact on the quality of women's lives, especially those who suffer heavy menstruation. These problems can also lead to limitations at work and school and hinder educational and academic achievements. Only few studies describe how quality of life (QOL) changes in women with an underlying haemostatic defect; poorer QOL being associated with more frequent bleeding symptoms. Early recognition, accurate diagnosis and appropriate management of bleeding disorders should improve not only the quality of care for affected women but also their QOL. Increased awareness of the high prevalence of menstrual problems especially menorrhagia is essential for early diagnosis and provision of appropriate treatments without any delay. Accurate knowledge of the impact of menorrhagia on health-related quality of life (HRQOL) and its adequate assessment help individualize treatment and assess the magnitude of changes in HRQOL. An ideal situation would be to use a generic and a disease-specific measure together so that comparisons can be made on a general and disease-specific level.