Family Caregivers of Veterans Experience High Levels of Burden, Distress, and Financial Strain.

Family Caregivers of Veterans Experience High Levels of Burden, Distress, and Financial Strain.
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DOI:
10.1111/jgs.16767
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发表时间:
2020-11
影响因子:
6.3
通讯作者:
Van Houtven, Courtney Harold
Van Houtven, Courtney Harold
中科院分区:
医学1区
文献类型:
--
作者:
Shepherd-Banigan, Megan;Sherman, Sophia R.;Lindquist, Jennifer H.;Miller, Katherine E. M.;Tucker, Matthew;Smith, Valerie A.;Van Houtven, Courtney Harold

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描述为患有精神、身体和认知共病的退伍军人提供护理的家庭成员和朋友的生活经历以及身体和情感需求。横断面研究。2017年至2019年进行的全国电话调查。退伍军人的家庭照顾者在2016年10月至2018年7月期间参加了退伍军人事务部(VA)的一般照顾者支持服务计划,他们回答了电话调查(N = 1,509;响应率= 39%)。我们研究了照顾者的负担,抑郁症状,经济压力,护理满意度,数量和持续时间的照顾,生活混乱,孤独,和整合的照顾者与医疗团队使用验证的工具。我们还收集了照顾者的人口统计学和社会经济学特征,并要求照顾者识别退伍军人的状况,并提供退伍军人的功能评估。照顾者的平均年龄为62.2(标准差[SD] = 13.7),退伍军人为69.8(SD = 15.6)。在照顾者中,76.7%的人认为自己是白色,79.9%的人与退伍军人结婚。护理人员报告说,他们提供护理的平均时间为6.4年,平均每天花费9.6小时,每周花费6.6天提供护理。平均Zarit主观负担评分为21.8(SD = 9.4;范围= 0-47),远高于临床显著负担的临界值(>16)。护理人员报告了高水平的抑郁症状;流行病学研究中心抑郁10项量表评分的样本平均值为11.5(SD = 7.1;范围= 0-30)。照顾者也报告了高度的孤独感和经济压力。照顾患有创伤性合并症的退伍军人的护理人员报告了密集的治疗和显着水平的痛苦,抑郁症状和其他负面后果。这些照顾者需要全面的支持服务,包括获得医疗保健、经济援助和加强的临时护理。计划扩大VA照顾者支持有可能为这一人群提供积极的利益,并作为VA医疗保健系统以外的照顾者支持计划的模式。
To describe the caregiving experiences and physical and emotional needs of family members and friends who provide care to veterans with mental, physical, and cognitive comorbidities. Cross-sectional study. National telephone surveys administered from 2017 to 2019. Family caregivers of veterans enrolled in the Veterans Affairs (VA) Program of General Caregiver Support Services between October 2016 and July 2018 who responded to a telephone survey (N = 1,509; response rate = 39%). We examined caregiver burden, depressive symptoms, financial strain, satisfaction with care, amount and duration of caregiving, life chaos, loneliness, and integration of caregiver with the healthcare team using validated instruments. We also collected caregiver demographic and socioeconomic characteristics and asked caregivers to identify the veteran’s condition(s) and provide an assessment of the veteran’s functioning. Average caregiver age was 62.2 (standard deviation [SD] = 13.7) and 69.8 (SD = 15.6) for veterans. Among caregivers, 76.7% identified at White, and 79.9% were married to the veteran. Caregivers reported having provided care for an average of 6.4 years and spending on average 9.6 hours per day and 6.6 days per week providing care. Average Zarit Subjective Burden score was 21.8 (SD = 9.4; range = 0–47), which is well above the cutoff for clinically significant burden (>16). Caregivers reported high levels of depressive symptoms; the sample average Center for Epidemiologic Studies Depression 10-item Scale score was 11.5 (SD = 7.1; range = 0–30). Caregivers also reported high levels of loneliness and financial strain. Caregivers who care for veterans with trauma-based comorbidities reported intensive caregiving and significant levels of distress, depressive symptoms, and other negative consequences. These caregivers require comprehensive support services including access to health care, financial assistance, and enhanced respite care. Planned expansion of VA caregiver support has the potential to provide positive benefits for this population and serve as a model for caregiver support programs outside the VA health care system.
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