Sources and types of online information that breast cancer patients read and discuss with their doctors.
Sources and types of online information that breast cancer patients read and discuss with their doctors.
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DOI：
10.1017/s1478951513000862
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发表时间：
2015-04
影响因子：
2.2
通讯作者：
Bylund CL
中科院分区：
文献类型：
--
作者：
Maloney EK;D'Agostino TA;Heerdt A;Dickler M;Li Y;Ostroff JS;Bylund CL
大多数研究寻求在线健康信息的患者的影响都以同质方式对待互联网信息，而不是认识到可用信息有多种类型和来源。本研究的目的是区分患者搜索、打算与医生讨论以及回忆与医生讨论的互联网信息的来源和类型，并确定患者对这些信息的准确度和希望程度。我们对从乳腺肿瘤内科和外科诊所的候诊室招募的 70 名乳腺癌患者进行了调查。研究中的主要变量如下：（1）患者已阅读、打算讨论以及实际与医生讨论的在线信息的来源和类型，以及（2）他们对这些信息的评价有多准确和有希望。患者最常从癌症组织的网站上阅读信息，并且最常见的是有关副作用的信息。患者计划与医生讨论的信息类型比他们读到的要少。他们最常打算讨论来自癌症组织网站或 WebMD 的信息，这些材料最常涉及替代疗法、副作用以及经过验证的或传统的治疗方法。大约 76.8% 的参与者认为他们读到的信息非常或有些准确，61% 的人认为他们读到的信息非常或有些有希望。互联网信息因来源和类型而异。区分信息来源和类型对于探索在线健康信息影响患者体验的方式至关重要。
Most research examining the impact of patients seeking online health information treats internet information homogenously, rather than recognizing that there are multiple types and sources of available information. The present research was conducted to differentiate among sources and types of internet information that patients search for, intend to discuss with their doctors, and recall discussing with their doctors, and to determine how accurate and hopeful patients rate this information. We surveyed 70 breast cancer patients recruited from the waiting rooms of breast medical oncology and surgery clinics. The main variables in the study were as follows: (1) the sources and types of online information patients have read, intended to discuss, and actually discussed with their doctors, and (2) how accurately and hopefully they rated this information to be. Patients read information most frequently from the websites of cancer organizations, and most often about side effects. Patients planned to discuss fewer types of information with their doctors than they had read about. They most often intended to discuss information from cancer organization websites or WebMD, and the material was most often about alternative therapies, side effects, and proven or traditional treatments. Some 76.8% of total participants rated the information they had read as very or somewhat accurate, and 61% rated the information they had read as very or somewhat hopeful. Internet information varies widely by source and type. Differentiating among sources and types of information is essential to explore the ways in which online health information impacts patients’ experiences.