Characterizing Enrollment in Observational Studies of Duchenne Muscular Dystrophy by Race and Ethnicity
Characterizing Enrollment in Observational Studies of Duchenne Muscular Dystrophy by Race and Ethnicity
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DOI：
10.3233/jnd-190447
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发表时间：
2020-01-01
影响因子：
3.3
通讯作者：
Vandenborne, Krista
中科院分区：
文献类型：
--
作者：
Barnard, Alison M.;Riehl, Samuel L.;Vandenborne, Krista
观察性研究受益于纳入不同的队列。为了描述杜氏肌营养不良症（DMD）观察性和自然史研究中的种族和民族多样性，确定了高引用率和有影响力的观察性研究。纳入了14篇美国文献。所有研究都引用了>70%的白色参与者，其中大多数参与者很少有少数种族。黑人/非裔美国人的入学人数特别有限（
Observational research benefits from inclusion of diverse cohorts. To characterize racial and ethnic diversity in observational and natural history research studies of Duchenne muscular dystrophy (DMD), highly cited and influential observational studies were identified. Fourteen United States-based articles were included. All studies cited >70% White participants with the majority having few racial minority participants. Enrollment of Black/African American individuals was particularly limited (